posted
Hi, I want to know if anyone knows out there how many folks really die of Bart or Lyme. I am worry b/c I have it and wondering the statistics? I only see a few here on the site that may have past on from it. From what I see most just suffer or get better or relaps.
Posts: 476 | From Columbus, Ohio | Registered: Aug 2007
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Stacy,
I do not think that anyone knows how many folks ultimately die from TBDs. There is a lymenet member, Melanie, who has set up a memorial page for those that have.
I believe that most can get better if you keep treating and work with a good doctor! Keeping optimistic in the face of this struggle is important. Take care.
Posts: 2557 | From home | Registered: Aug 2006
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posted
many people die undiagnosed or misdiagnosed, so no one really knows
Posts: 615 | From maryland | Registered: Oct 2007
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jamescase20
Unregistered
posted
http://iai.asm.org/cgi/content/full/69/7/4373 "Bartonella bacilliformis is the only bacterium known to invade human erythrocytes. The pathogen is the causative agent of the human disease, Oroya fever, a biphasic illness whose primary-phase symptoms include a severe hemolytic anemia, where up to 100% of the circulating erythrocytes can be parasitized and 80% lysed (1, 15, 31). If untreated, this phase of the disease has a 40% fatality rate (44)." Late stage bart rarely results in death...dont worry susan...your a late stager right?
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
How many DIE?
Waaaaaaaaaayyyyyyyy Too MANY!
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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adamm
Unregistered
posted
Wait--B. henselae doesn't invade HUMAN erythrocytes?
What about the studies they conducted in which they demonstrated
that the bug is invincible inside red blood cells?
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
NOTE: MOST Lyme deaths are foreseeable and thus preventable. Cardiac Lyme you generally learn what is going on and not just drop dead and it's rare. ALS Lyme you know ahead of time but can't stop it usually. Suicides are most common way to go which is form the Lyme/TBDs. Anoxic encephalopathy which is a common way to go is COMPATIBLE WITH BABESIOSIS and in my opinion is probably from that a good % of the time. So get treated for Babs even if you are negative because many people are, don't kill yourself, pray you don't get ALS symptoms and get your heart checked out if you have any problems.
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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