I just had my gallbladder out on Monday because of my Rocephin IV Therapy. I am just into my seventh month treating Lyme with Rocephin IV. I am 20 months treating Lyme/Erlcihlisos overall with orals and bicillin shots.
Before the surgery I was saying I was back to 90% pre lyme diagnosis. This last week I feel like I've slid to 60% of where I was. I've noticed an increase in body jolts/jerks.
My myoclonus which was almost gone seems to have come back.
All in all I've been too sick to say I feel relief from this surgery. I've had diarrhea for two days but I'm pretty sure I brought this on. I was so constipated from Vicodin and other drugs I took double doses of Metamucil. I'm now hugging the toilet for that.
For a surgery that was supposed to be a nothing surgery I feel like a train wreck. I feel like the lyme took over once again since the surgery.
Did anyone else out there experience surgery and backslide?
Barb
Posts: 281 | From san francisco | Registered: Jun 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I've had many surgeries, all before I either had or realized I had lyme. And I had a hard time getting back to my normal, even in college. I didn't know what had happened. No one warned me that I'd be exhausted for a long time, brain fog, too.
But we know more know, so I hope answers come along.
I wonder if the anesthesia isn't a factor here. It can take a while to work out of your body. That - and the pain meds - could be making the myoclonus sneak back (would calcium help? It calms. I'd say magnesium, but not with loose bowels.
Also - maybe the stress, the endurance marathon of the surgery (even a simple trip to the store wears us out, so even a simple surgery can feel like a mountain climb to our bodies even if they are asleep). We may be asleep, so to speak, but our bodies are taken on a ride, poked and proded.
Maybe when you can hold some nutrition, you'll feel better. Liver supplements, fish oil ?
I'm sorry to hear you're not feeling well. I suffer the same thing too, whenever I have to have any surgical procedure done that involves anethesia. Even getting my wisdom teeth out wiped me out for a very long time. I think our bodies just take longer than average to get back to 'normal'.
I know it's discouraging to feel you've gone backwards. When that happens to me (more often than I'd like), I try to remember what my llmd said to me--Just knowing that I had some improvement (even if it was a week), tells him that it's possible for me (and you) to get there again. You have seen great improvement and for longer periods of time. So, try not to be too discouraged. You can get back there again!
Get comfy on the couch and watch a good movie (between trips to the potty ) I know for me, sometimes just getting my mind on something diverting and uplifting helps to lessen my stress over my situation...at least for a little while. I hope it will for you too.
I'll be thinking of you and praying each day is better and better!
Laurie
Posts: 136 | From North Carolina | Registered: Apr 2007
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posted
YOU TOOK THE WORDS ABOUT THE SURGERY BEING NOT THAT BIG OF A DEAL TO BEING A TRAIN WRECK right out of my mouth!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
My neuro stuff came back to!! My claw hand and numbness in my hands.
I am so sorry you are having this problem too.
The surgery TOTALLY wiped my butt out and hurt my GI track. It was half the reason I quit my Hyperbaric Treatment. It happened after dive 17.
I really wanted to do it so I could stay on the Rochephin ( I am not nearly as improved as you are) but gosh...it was a hard surgery!!!
How many days did you stay after???
The previous post sound so right on.
Keebler-what good advice. You are such a sweety!! I really enjoy your posts and help.
It took me about 5 weeks for my stomach not to totally hurt with every movement.
PM me for any more questions. I would love to know who your LLMD is. Do we have the same one??
I really hope your recovery comes soon.
Jennifer Praying for your speedy recovery. You will get back there...
Posts: 111 | From San Francisco | Registered: Feb 2007
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Please let this be a warning to all those out there who have not yet cut parts out of their bodies.
Surgery is harsh on even a healthy body. It is severe trauma and should never be considered except as a last resort.
Maybe we can live without gallbladders, spleens, one of our kidneys but we will not live as well as with all our "healthy" body parts. Gallbladders do have a job and when removed, the remaining body parts have to compensate.
Many times here, I have seen way too many people approach gallbladder surgery like a party to be celebrated.
Once your gallbladder is too sick to keep then it must be removed. But you are left a lesser person.
Better to take excellent care of your body and try to prevent the sickness. There is no drug out there so important that we should be willing to kill body parts to get it. We should seek safer ways to get well.
Optimal diet is the very best way to protect your body from disease and drug side effects. Taking drugs cautiously is also important.
sfcharm, I am really sorry you are suffering. Please use your experience to warn others.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
I had a colonoscopy and laparoscopy in the same week when I first got sick last year.
It made me so much sicker than I already was. I could feel the infection spreading from my
abdomen to the skin tissue in my breast, joints on my left side.It was then that I knew it was
kind of infection as opposed to endometriosis like everyone thought. t was so hard on me and
I think if they had listended even after the tests came back negative I wouldn't have been in
as bad condition. So frustrating when docs think they know more than you. I rebounded on
my own with the help of a bio-energetic practitioner. It didn't come up that I had
lyme, but a parasite. She gave me some herbs and suppliments and I slowly recovered a.but 70%
I was a little miffed that the lyme didn't show up until I looked at what was in the herbs she
gave me. That was the reason I got back on my feet. Cowden herbs! I am going back to see her
this week. Hope she can help again. I am taking doxy and I think a combo treatment is key.
Hope you can gain some of your strength back!
[ 13. January 2008, 02:45 PM: Message edited by: Ruthie1776 ]
Posts: 22 | From Chicago | Registered: Nov 2007
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Yes, Cavey. Thanks for the gentle correction.
I mean there is less of us, not that we are lessened.....except, of course, physically we are lessened.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
Surgery will almost always cause a dip in our level of functioning. Even those without Lyme can tell you that.
I had a nice hospital infection following my GB surgery and it knocked me flat for months. The only thing that really helped me get back on my feet was Xango and B-12 shots.
Hang in there....you'll get better. It just takes time!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Hopefully it will be just temporary!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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) I know for me, sometimes just getting my mind on something diverting and uplifting helps to lessen my stress over my situation...at least for a little while. I hope it will for you too.
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