posted
I am always cold, I'm miserable if the ambient temperature drops below 70.
I know I have a low body temp all the time now, have you checked your temperature at all? That could be it.
-------------------- Jennifer Posts: 266 | From Ocean County, NJ | Registered: Aug 2007
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Hows your blood work? If its fine You should get hormone blood work also.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Yes, like Johnny and Tree. Even though I've had the usual testing thru my internist & seemingly come up normal, I'm going to take it to the next level with a really top notch endocrinologist to delve deeper into the whole thyroid question. So many of my remaining stubborn symptoms can be related to thyroid issues, that I thought it would be worth the time and money to investigate. Maybe it would be worth it for you, too.
Best -
otm
Posts: 314 | From east coast | Registered: Oct 2007
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posted
Me too -- freezing all the time! One thing that helps me slightly is sitting right in front of a far infrared heater I bought -- the infrared heat is really penetrating so I actually start to feel a little warmer in my bones.
The other thing is always keeping a layer of wool next to my skin. Wool is the best material for naturally regulating body temperature. Some outdoor stores make wool base layers that go against the skin, but a wool sweater works just fine too, with wool socks.
Personally my thyroid has always been normal, and I don't do well using thyroid anyway, so I don't know what the problem is.
Posts: 929 | From Massachusetts | Registered: Oct 2007
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Latest routine blood work revealed slightly low red blood cell count but not anemic.
Previously all thyroid tests came back as in the normal range although my LLMD prescribed the iodide for me. I took that for awhile almost a year ago but it made my heart really go nuts so my doc said stop for now.
That's a good idea about the thyroid, likely may have something or a little to do with it.
My body temp is usually low but these chills seem different. Probably just need to get the blood flowing.
posted
It seems pretty obvious to me.....,you were fine until you stopped treatment, then a few months later, Sx's have started back up again.
I don't think that you ever completely cleared Babesia, and that's the main problem right now.
Thyroid hormones and all that other supplementing stuff is just a band aid.....they can help you to feel better, but that's all. The infections will still be there.
-------------------- You're only a failure when you stop trying. Posts: 945 | From U.S | Registered: Oct 2004
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posted
Also, Painted, I wasn't meaning that it ISN'T Lyme or Babs, I just meant that I feel LD may have AFFECTED my thyroid function in an adverse way, & I would like to know the EXACT situation (if I can). This would by no means eliminate the need to work on the infections first and foremost. I'm not thinking I'll be medicating for thyroid; I'm thinking I'll gain a better understanding of how my LD is acting upon me, and which of my symptoms may be more that issue then neuro (as I've been assuming they were.)
Sorry I am not the clearest communicator these days.
As to chills: one time my husband and I were due at a dinner. I had the chills so badly we had to drive around and around the restaurant for about a 1/2 hour with the butt warmer blasting! They chills were so extreme I thought they were going to turn into convulsions. So I know what you're talking about! Best -
otm
Posts: 314 | From east coast | Registered: Oct 2007
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posted
Thanks for sharing that, on the mend. It's a good point to consider how the LD has altered nearly every biological system.
I suppose that is what makes it so hard to get a handle on once all chaos breaks loose. And I've become very grumpy which is so not my nature, at all. Very grumpy.
Also, my thinking is off and I know it, but seem to have trouble correcting it on many days.
It's amazing how the aftermath of such destruction seems to leave a wake of .... shock, or what appears to be a bit of, permanent damage.
With all the pain and PTSD and OCD and prolonged encephalopathy that went on, and then to have to fight the medical establishment and learn to navigate in order to save my own life, is bound to leave some scars.
Kind of feels like I've been zinged, like you picture in the cartoons! Or is that zoinked? Maybe both!
After two and a half years of treatment, I have seen many changes and knock on wood, knock on wood, my headaches have subsided (afraid to say it cuz I always speak too soon! --but that would be hope for anyone else out there suffering from severe headaches).
Also, I have not vomitted since April so that's 8 months and I see that as progress too since I was vomitting bile quite often for several years.
So I've found several extra blankets and I just somehow keep going.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Get some b12 in you even a couple injections or sublingual but if you want to be sure you are getting the b12 injection is the way to go it helps the red blood cells and the nerve fibers.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Sorry, PT.
I do still have 'spells' like what you have described, with the awful chills. I honestly don't know if it is some kind of cycling of the bugs or what....
However, what I have found is that during period when the outside air is chilled and the air is damp - like from melting snow or in the spring when it is damp but still cold - that seems to be the worst. I am cold to the bone - even indoors! - and the chills are part of that.
I can't really explain it, but that's my experience. I don't know if you could be affected by 'cold humidity', but I certainly am.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I too am always cold. I always have the heat on in the house because I can't deal with a temp lower than 75. Sometimes 75 is still too cold for me.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
If your body temp is low, get a thyroid antibody test. If it is positive, ask yourself why would your own immune system attack your thyroid? Could it simply be infected? Maybe our immune systems aren't as "dumb" as some would have you believe!
I had terrible night sweats for a few years until my babesia infection was discovered & treated. My body temp started to rise as soon as I started the Marshall Protocol. Thyroid supplementation added 0.5 degree F at most. My body temp is now near normal & my night sweats have not returned for more than 1 year.
I doubt it is a coincidence that so many diagnosed with "Lyme Disease" also have abnormally low body temp & thyroid trouble.
[ 22. January 2008, 12:41 PM: Message edited by: B R H ]
Posts: 246 | From Grass Valley, CA | Registered: Jun 2007
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