I have been treated for Lyme for almost a year now but have had some persisting symptoms for several months.
All tests for co's are continuously negative, but I know that doesnt mean I dont have them.
My LLMD and a LD specialist, DR KL in NY, have decided to try me on treatment for babs to see if I improve (started malarone this week). I think, after more research here, that I may have bart and babs.
I would like to hear your experienced opinions on what you think may be going on.
My persisting symptoms that can come and go are:
fatigue/weakness - always there but is varying in severity every couple of weeks or so.
Sweats- now usually just from my neck (wierd) and very clammy type sweat
Mucle spasms, crawling leg muscles, migrating twitches
migrating muscle pains
bone pain- mainly bottom of legs, but sometimes moves throughout my body
shin pain and tenderness
agitation,irritable
depression, mood swings despite drugs to control
cognitive problems-slow processing, memory, feeling lost
neck pain
sick/flu feeling
My persisting symptoms that are 24/7:
tinitus- loud non stop ringing in my ears
headache- outside squeezing nonstop, vice-like
Sound sensitivity- often accompanied by confusion, irritation, and feeling like I cant be touched
these three seem to go together as they all get worse together when Im stressed or more fatigued
So...I know Ive asked similar questions before, but now after doing more research on the co's I'd love to hear your opinions before I see my doc again
Thanks! BJK
-------------------- BJK
Nothing I write here is medical advice...I'm just another lymie sharing how this disease has affected me personally Posts: 175 | From Central Maine | Registered: Sep 2007
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
id like to hear some too!
thanks
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
I tested negative for both, but was treated from the beginning for babesia because of my drenching sweats and air hunger.
Finally, I was put on Levaquin for bart and got better, all my cognitive issues went away. We were actually discussing IV because of the cognitive involvement.
So many symptoms overlap with these coinfections it's hard to tell what you have, but some seem to be bart symptoms, like shin pain and the cognitive issues.
In case it helps, this is what I was on when I was being treated for both -- Levaquin, mino, plaquenil, malarone, lariam, artemisia, tindamax.
Have you reacted at all to the Malarone?
I was weaning off meds and my air hunger came back within about a month. I started on Malarone after two weeks of air hunger. Today is day 2 of Malarone and I have gone from being 95% of normal to lying around all day .... I have had a very clear reaction to the Malarone even though I just got off it six weeks ago (and was not herxing from it at all then).
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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