posted
Here are my IGeneX results. What do you folks think?
Before I was diagnosed with Lyme I was just about to start treating high HHV-6 and moderate CMV and Pp titers. I know that Lyme can cause these viruses to reactivate, but I'm also wondering about false positives because of them. I searched for other people's results and most seemed to have more bands and ++++ than mine.
I had a Stony Brook test that said I was negative (don't have the numbers here).
PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results!
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Welcome CT...
My you've had a time of it, haven't you?
Sorry about that!!! I really am. At least you are doing a lot to get to the bottom of it all. Good for you!!!
I am NOT a doctor.. but if these were my tests I would have to say I've got Lyme!
Ignoring the results of this test would be a sad thing. I see enough indication of exposure to make me think Lyme should be explored with a sincere effort.
If you weren't exposed to Lyme... you wouldn't have the +++ and the IND's you have.
And not to worry about the difference between the + and a +++.
Having a + rather than having the +++.. is like saying...
"Oh, I am just a little bit pregnant."
MANY things can affect the tests and make them be negative or not a HUGELY strong positive.
Previous antibiotics, spirochetal load, length of time with Lyme, etc. Too many reasons to list now.
If you have symptoms, have been in an endemic area and have these results..
Go out now and get a gallon of ice cream to eat.
Be cause it's the last you're gonna have for a while.
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
"I searched for other people's results and most seemed to have more bands and ++++ than mine."
Look again. My results were crap compared to yours. All I got was one positive band (41++), which doesn't always mean lyme. Many people get a lot less bands than you got. I think you're very lucky in that. I wish I would have gotten as many bands as you. Then it would have been so much clearer to me. And I wouldn't feel the need to continually worry if lyme is really what I have or it's something else, etc., etc...
Also, I noticed that on your signature, it says "no co-infections". You may not have gotten a positive on them, but you still probably have one or a few of them (most of us do). There are other labs that do co-infection testing. You could always ask your LLMD about that.
Glad you found out what you have and now you can treat it.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I'd contact Igenex and ask for the 30/31 KDA confirmation test. If that is negative, then all you have is a 41, and 66 on your IgM. The IgG certainly has more bands, so lyme may be part of your problem.
But it may or may not be your problem...and it may not be your only problem...
I'd also consider how high your your antibody titers are to HHV-6 and CMV and Pp (what's Pp?) Also get tested for EBV if you haven't...and VZV..
You may need only an antibiotic, or only an antiviral or both.
Also, get ahold of your stonybrook results..and add those into the equation in deciding what you are ill with.
It's best to gather all the data you can..analyze all the data you can and then decide what is the best treatment to start with.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
Bands 83-93 are the DNA of the lyme bacteria. Can't get more positive than that!
READ the link 'bettyg gave you. Each band is explained in detail.
"83: This is the DNA or genetic material of Borrelia burgdorferi. It is the same thing as the 93, based upon the medical literature. But laboratories vary in assigning significance to the 83 versus the 93.
93: The DNA or genetic material of Borrelia burgdorferi."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
timaca ~ thanks for chiming in. I was hoping you would provide your two cents. I recognize you from my lurkings on the HHV-6 and ProHealth boards when I was researching CFS.
I don't have my Enlander viral results handy, but I recall my HHV-6 being something like 1:320 and Cp (not Pp) being 1:640... or something like that. I don't think it would be healthy to take on both issues at once so I'm going to go after Lyme first. I'm feeling some herx effects from my first 3 weeks of abx. Perhaps if/when progress is make there I can address the viral issue. Or maybe my immune system will kick in properly.
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