how long before change of meds? would you add bicillin to the mix? (maybe this is just not enough to hit the lyme.)
Posts: 347 | From sweden | Registered: Feb 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Who is treating you? PM me if you would. As far as Rifampin goes, it can take quite awhile. 4-6 months or longer.
I'm assuming Bartonella is suspected or present? Levaquin was used previously? If so did you have side effects?
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
If you are thinking of adding a med, my first suggestion would be a babesia med. Many including hubby have babesia symptoms come out when treating bart or vice versa.
Both bart and babs like the red blood cells so it makes sense that treating one would effect the other.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
I didn't really turn the corner until my 3rd month of the same protocol you're on. I went off meds after 5 mos due to a clear Fry lab, muscle testing and clinical symptoms gone.
I believe my protocol was on the "short" side of Bart treatment. Many have been on the same protocol for 6-9 mos and then need Levaquin after that.
Not trying to bring you down. You just need to keep it in perspective because there are so many different strains of Bart and everyone takes different lengths of time.
Surely you will not be at the herxing level with these symptoms the entire time...but it does take time for the massive herxing to settle down.
I'm so sorry you're suffering and I know how it feels to want time to just pass so you can be done with this already!
Healing thoughts your way and hang in there as it WILL be worth it in the end,
posted
Been on Riphanin and Mino for appx 6 weeks, small cognitive improvements. Receipt swollen glands in neck, never had this before- figured abx was either working or making my glads work extra hard to process.
Am to stay on this for another 6 weeks for late state bartonolla. Then wait two weeks and get re-tested.
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
posted
I took Rifampin since July to December ,than was on homepathic formula.Than 1 months off only on ketek and herbs for bart.Did I mentioned 2 months prior to antibiotics IV blood iradiation for bartonella only .BUt $$$.
after that started LEVAQUIN in february and stopped do to tendonitis on MARCH.Have been back for 2 months on rifampnin again.
Saw my dr( that does try the drugs and herbs based on muscle testing ) not the llmd YESTERDAY .I felt that my bart was back.Actually the muscle testing shows that rifampin is not working anymore( mind you -I was 2 weeks even on 1200mg at once ).
Also was taking CUMANDA for the last 3 months .But did not looked as promising as the begining.Now my body does not want it anymore.
My body wanted 1000mg levaquin.That women is gifted on mucsle testing as she saved my life back in march 2007 when I was dying.
So my body wants LEVAQUIN ( but it causes me tendonitis) .I have to see what my llmd would say tomorrow.
She uses muscle testing also.So I was total 7 months on rifampin -and 6 weeks on levaquin .Now I still have BLO and bartonella .But I know I got bart in EUROPE and BLO in North AMERICA.
So depends on the strain and the load.
BART is my major problem.I feel as AZITHR helps.And so my dr said from Muslce testing .
So let see what is going to happen.I have been chasing bart since July 2007 .
WENT back on RIFING.I herxed and felt better after rifed.I hope that I am not going to be dealing with it for the rest of my life and the only option left is RIFE.
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