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» LymeNet Flash » Questions and Discussion » Medical Questions » URGENT: PCOS/menstrual irregularities....women only!

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Author Topic: URGENT: PCOS/menstrual irregularities....women only!
knshore
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To make a very long story short, I have had my period pretty much for about a month. It's pretty light, but has gotten heavier in the last week or so.

So, I didn't tell my LLMD about this at my last appt but he knows this has happened before...I had my period for 90 days straight.

Since I clearly have a problem with menses regulating, he wanted to test me for PCOS. So, I am going for a pelvic u/s next week.

My question is mainly...do I need to call my LLMD to tell him it's been almost a month since I had my period?

Because really, all he's going to do is either rx Birth Control Pills or have me get a pelvic u/s...but I'm already doing that next week.

So should I call? It might be another week at least until we get results from the u/s.

Posts: 215 | From Student | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
scared08
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Hi,

You do what you feel is best for you, however this was my experience.

My menses has been irreguler off and on for about 10 years. I even lactated for 3 monthes when the Lyme started affected me neurologically!! Of course the Dr. said this was "in my head" even though he saw how much milk I was producing! HHHMmmmm! Anyway.....

About 3 years ago I had a period that lasted 3 weeks. I called my GYN and they got me in that day. She didn't even order any tests. She immediatly did a uterine biopsy, which I really wasn't prepared for!

I went in for my results the next week, and she said that I had no, 0 hormones and this was the cause.

She immediately put me on hormones. Not birth-control pills, but hormones as if I was in Menopause. She was very baffled at this due to my age.

This was before I was finally diagnosed with Lyme and Co-infections. Once I was dx, then it made sense.

So-----if I were you, I would get into see a Gyn. Doc. as there can be many reasons for this. I was lucky that it was just no hormones. BUT it can be something very serious.

I pray for the best for you!

Posts: 351 | From Georgia | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
Cobweb
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Sometimes Lyme Disease in fact does cause issues with other organs, body parts, whatever, that require us to go to a specialist.

I spent a lot of time with a Urogynecologist as a result of my LLMD. She has my blessings when I need another specialist.

If you don't get much response here, try posting your question/health concerns on another Lyme Disease Forum at LymeNet Europe.

" Lyme Disease Forum
Here you can meet other Lyme patients and ask questions, post information and discuss it with others, share your story, and get support."

Go to medical or general-or perhaps there is an article in Science which will hold the answers.
Minimally I know they will try to point you in the right direction.

Good Luck

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merrygirl
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Hi kn.
\
I have PCOS and I dont think it would hurt to call your llmd, but there likeley isnt much he can do about it. maybe he can move your u/s appt up for you?

I have been on YAz birth control for a year now and my periods have been very easy and regular. I wish I had taken BCP a long time ago.

good luck and I hope it gets straightened out soon.

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knshore
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Thanks for the responses so far.

The thing is, I went to an ob/gyn for quite a while and she was pretty useless even though she was supposedly "the best."

They tried almost every birth control pill possible, and even they didn't stop the bleeding unless I was put on a double dose, which was HORRIBLE! I was SO nauseous I couldn't move... It was really awful.

Then once the bleeding stopped, she had me stay on the BCP's and even then, I once had a period last an entire month while ON the pill.

Also, they are hesitant to do most tests because I'm 17 and I'll let you figure the rest out...

Personally I don't see any point in calling my LLMD, but my mom kinda flipped out at me when I told her it's been about a month that I've had my period.

She doesn't want the whole 90 day thing to happen again, because that was the beginning of the end of my health problems.

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lymednva
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kn, sometimes "the best" aren't a good fit for you. i love my gyn, but had to see his partner, who is supposed to be good, and who my daughter loved.

my experiences with her were horrible. you may need to see a different gyn. however, with your problem i feel you need to get in NOW to a gyn.

that probably means see the one you have been s seeing. if her tx is not good, make an appointment now with another one.

i went through some horrific periods due to lyme. one thing you need to watch for is anemia. you definitely need a cbc run to check for that.

keep us posted, and don't wait!

--------------------
Lymednva

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Angelica
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If your doctor cannot get your periods down to a shorter amount of time you can try researching almond milk for this problem. It is used in Ayurvedic medicine to I think either cool the body down or heat it up I forget which but probably for cooling it down in Asian medical terms. It worked for me when my periods were 8 days a month. It got them down to 5 days a month. It might be worth a try if nothing else works for you after you check with your MD.

Maybe another poster will come along who will know more about how the almond milk works for long menses. You soak the almonds over night and mix them in the blender with water.

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ralph
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I wasn't a lady last time I looked, but I have worked with ladies and hormone imbalances for about 12 years.

As Diane, if I recall correctly, stated in another thread, a good amount of the PCOS can and does come from improper function of the hypothalamus and pititary glands.

Does helping those organs heal as best they can and then send the right signals to the ovaries sound like a good idea ? Because then you would be treating the source of the problem and not just the cysts.

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sixgoofykids
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Kn, I'd have your test then tell your LLMD. As you have said, he will most likely just order the tests you are already scheduled to have.

Though you might call because he might want to order a ferritin test due to your previous history.

Ralph might be onto something. You and I have discussed before trying to determine what is causing this issue to begin with.

--------------------
sixgoofykids.blogspot.com

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daise
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Ralph,


quote:

Ralph wrote:

As Diane, if I recall correctly, stated in another thread, a good amount of the PCOS can and does come from improper function of the hypothalamus and pititary glands.

Does helping those organs heal as best they can and then send the right signals to the ovaries sound like a good idea ? Because then you would be treating the source of the problem and not just the cysts.


Stop it. Stop posting flat-out lies about me. Stop it. Stop it right now. I have had it.

YOU WILL STOP IT NOW.

daise [Smile]

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daise
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Hi knshore,

You must be miserble.

A pelvic exam is not needed to diagnose PCOS. PCOS is diagnosed by blood tests. PCOS has been misnamed. The disease does not center on the ovaries. It's a disease of insulin ersistance.

Most doctors resist proper PCOS testing. You have to fight for it. Only certain birth control pills are used, or metformin, or both, for example.


quote:


Ralph wrote:

Does helping those organs heal as best they can and then send the right signals to the ovaries sound like a good idea ? Because then you would be treating the source of the problem and not just the cysts.


Ralph wrote utter crap. PCOS is a real disease. We with PCOS are not imagining things. He claims to be a chiropractor. By his statement above, it PROVES that he knows nothing about PCOS.

Please ... if you have PCOS then you need to know about it. I suggest Elizabeth Lee Vliet's book, The Savvy Woman's Guide TO PCOS. She is at the forefront of research and also clinical work with patient response.

Please see:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=060556

I wish you the best.

daise [Smile]

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ralph
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Hey Daise, I am pretty tired today and made a mistake with your name. Sorry. Or maybe it is another poster. I will check when I have time.

I was complimenting you on your knowledge of PCOS and the probable involvement of the pituitary and hypothalamus.

I did not say at all that PCOS is in your head or imaginary.

Are you trying to provoke me with your statements ? To perhaps get me chucked off ?
I will now recontact the administrators here.

Why do you discredit my degree ? Why do you doubt it ? My problem is that I am often too honest and straightforward.

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daise
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To everyone concerned about PCOS,

Ralph has lied--again. This is a vendetta.

I never wrote that PCOS is caused or probably caused by the involvement of the pituitary and hypothalamus.

daise [Smile]

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ralph
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My my, daise.
When you stated in a post regarding PCOS that lyme affects the hypothalamus and pituitary, I assumed you were aware of the research in the British Medical Journal from about 2 years ago that stated that about 80% of PCOS is from malfunction of those endocrine glands.

You did not know that before this ? That is why I said that increasing the health of hypothalamus / pituitary may really help those with PCOS.

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sparkle7
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I usually have very regular periods but I get very bad cramps.

Anyway, when I was in my 20's (I'm 46 now) I had this problem with my period. Many times drugs have been ineffective for me. I choose to study herbs & find therapies that way.

I found that licorice root is estrogenic & cleared up the problem I was having with the bleeding. Licorice root is supposed to balance out the estrogen.

You may want to check into it if you have any inclination to treat yourself.

I am not an herbal doctor & many herbs have contra-indications if you have other health issues.

Do a search on google for "Licorice root, menstrual irregularities, estrogen".

Also do some research into essential fatty acids. There are a number of useful herbs for treating menstrual issues.

This website has some good info- http://www.rvita.com/conditions/menstrual-irregularities.html

I have had very bad menstrual cramps all of my life. I've have seen numerous GYNs & spent lots of money & none of them have helped me.

There are really very few GYNs that have any knowledge of how Lyme effects the hormones &/or genito/urinary tract. Many LLMDs don't know much about this, either.

Good luck!

Posts: 7772 | From Northeast, again... | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
   

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