posted
I was thinking about the Mystery Diagnosis episode with Jackie Sparr. I remember posting on here about it and being told that Jackie is a member on here. I thought that was pretty cool.
Anyway, just wondering how she is doing. Jackie, if you are here, how has your treatment gone? Are you off of antibiotics? Just curious...
Posts: 248 | From Tejas | Registered: Jun 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I spent a lot of time with Jackie at the UNH conference. She looked wonderful, but is still having many struggles. She was in obvious pain, and taking pain meds throughout the conference.
She had difficulty walking as well. Despite that she has an incredibly positive outlook and wants to move forward with activism, especially in reaching out to other teens.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
OH, also, she is on several different antibiotics at this time.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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