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» LymeNet Flash » Questions and Discussion » Medical Questions » Change in meds will inevitably send me to the ER

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Author Topic: Change in meds will inevitably send me to the ER
AP
LymeNet Contributor
Member # 8430

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Hey guys!!! I don't post very often anymore, but I'm really frustrated right now...

Monday I'll add to the Vanco, and begin Rifampin IV. I'm not very scared of herxing, but since the begining of the year, every time I've changed meds, I go into anaphylactic shock.

We thought we'd ruled out panic attacks, as I pre medicate with Valium, Xanax, and Ativan... My throat literally closes and the only thing that's been able to help is my dang epipens.

Does this happen to anyone else???

It's not always just a one time reaction... I've been known to have reactions for a couple weeks and then nothing. I absolutely cannot be allergic to all of these meds and know that it's my body being dumb, but still... I am beyond frustrated.

Suggestions???

--------------------
Sometimes when I say �Oh, I�m fine� I want someone to look me in the eyes & say �tell the truth�

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Posts: 644 | From WA | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
Vermont_Lymie
Frequent Contributor (1K+ posts)
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You should absolutely get tested by a doctor who tests for allergies before starting a new medicine, given your history.

An allergist can go skin and other tests (respiratory) to make sure you do not react with a potentially life-threatening anaphylactic reaction before you start a new abx.

They can give you the go-ahead or red light that you need before starting a new tx. Why risk your life and all the pain of an anaphylactic reaction?

Not a doctor, but someone with allergies too.

Posts: 2557 | From home | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
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I can't understand why you would not at least try a small dose of oral Rifampin before trying IV?

I sure wouldn't be willing to take the chances you are taking.

I don't know your med history, but for many patients even oral Rifampin is one of the most difficult drugs to tolerate.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
djf2005
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test the meds via ART before consumption.

agreed also that small oral amounts may be the way to go to see if you tolerate

i do believe the reactions you are experiecing are not from the meds but herx reactions since i had things similar to this as well but its better to be safe than sorry..

can your llmd admit you to a hospital for a bit while the meds are administered initially just in case? it would be much easier if you were already there...

hang in there. rifampin is a great med and hopefully will help you a lot..

cheers

derek

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"Experience is not what happens to you; it is what you do with what happens to you."

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TerryK
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Wow, very sorry you are dealing with this.

As already mentioned, you can be checked for allergies to a med before you put it into your body.

I'd be looking for a common filler or excipient to see if that might be causing the allergic reaction.

Terry

Posts: 6286 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
   

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