LymeNet Flash: Wife starting Rochephin shorty- any recommendations/feedback

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Wife starting Rochephin shorty- any recommendations/feedback

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Topic: Wife starting Rochephin shorty- any recommendations/feedback

hcconn22
LymeNet Contributor
Member # 5263

posted

She has been on orals for 3 years and now bicilan for appx 6 months. Major symptoms include extreme fatigue, sleep problems, pain in wrists, hands, knees.

Has a positive CDC lyme test and possible bart and babesia.

Any feedback and ideas would be appreciated.

--------------------
Positive 10 bands WB IGG & IGM
+ Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest

And still positive ELISA and WB two years after IV treatment
http://www.lymefriends.org/profile/blake

Posts: 607 | From Tick Town, Connecticut | Registered: Feb 2004 | IP: Logged |

Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021

posted

Up for help

--------------------
Fall down seven times, get up eight
~Japanese proverb

Posts: 1146 | From west coast | Registered: Mar 2008 | IP: Logged |

Rianna
Frequent Contributor (1K+ posts)
Member # 11038

posted

I am on IV Rocephin, the key points are to ensure she takes Destolit 300-600 3 x Day due to the pottential gallbladder issues as it often causes Bilary sludging.

If she is infusing herself via a PICC be educated about sterile Techniques and PICC

Rianna

Posts: 1172 | From UK | Registered: Jan 2007 | IP: Logged |

lou
Frequent Contributor (5K+ posts)
Member # 81

posted

So, has she gotten any treatment for babs or bart?

Most lyme docs think that a cyst buster needs to be added to rocephin, like flagyl or tinidazole.

Some people think that low dose naltrexone helps with the fatigue.

How is her thyroid?

Posts: 8430 | From Not available | Registered: Oct 2000 | IP: Logged |

lmz1100
Member
Member # 15487

posted

I have a low functioning gall bladder and my doc put me on IV Rocephin anyway. I lasted a week. Now I need to have the gallbladder out and there goes my week of treatment down the drain. Be careful.

Posts: 30 | From Tampa | Registered: May 2008 | IP: Logged |

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