LymeNet Flash: Flagyl Side Effects

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Flagyl Side Effects - Permanent?

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Author

Topic: Flagyl Side Effects - Permanent?

kellyb2411
LymeNet Contributor
Member # 15467

posted

Hi,

I am starting flagyl soon and I was wondering if some of the side effects mentioned such as paresthesia (tinging, burning, numbness) are permanent damage or just side effects while taking it.

I often get these symptoms as part of the illness and also they increase during a normal herx.

I am just concerned how to determine it its a side effect or a herx once I start it.

I am unable to get tinidazole unfortunately as my doctor could only prescribe it 4 tablets at a time.

Thanks

Kelly

--------------------
Sx Start Jan 08 (test neg, but herxing)Susp Lyme, Bart + Babs??

ABX
Doxy 400mg + Amox 1g Jun - Sep 08
Rifampin 600mg + Biaxin 1000mg
Tinidazole 1000mg/day - Sep 08 to June 08

Currently taking Salt/C 15g (himalayan salt)

85-90% better

Posts: 231 | From Australia | Registered: May 2008 | IP: Logged |

paulieinct
LymeNet Contributor
Member # 17514

posted

Like you, my neuropathy symptoms persist after 6 mos. of treatment. Balance issues, burning and numbness in my feet. The symptoms were worse before abx, so I guess I'm headed in the right direction, but very sloooooooooow.

--------------------
Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

Posts: 765 | From nw ct | Registered: Sep 2008 | IP: Logged |

MayberryNut
LymeNet Contributor
Member # 16589

posted

My neurological symptoms are slow to leave as well. The tremor that I have, interestingly enough, seemed to diminish slightly after a the first few weeks of Doxy, but has plateaued over the last month or so and hasn't improved much. I'm assuming this will require patience over the long haul.

Posts: 131 | From MD | Registered: Jul 2008 | IP: Logged |

kellyb2411
LymeNet Contributor
Member # 15467

posted

Same,

I really want to know though if the neuropathy side effect of flagyl is one that lasts only while taking it or is it permanent damage it causes??

thanks

Kelly

--------------------
Sx Start Jan 08 (test neg, but herxing)Susp Lyme, Bart + Babs??

ABX
Doxy 400mg + Amox 1g Jun - Sep 08
Rifampin 600mg + Biaxin 1000mg
Tinidazole 1000mg/day - Sep 08 to June 08

Currently taking Salt/C 15g (himalayan salt)

85-90% better

Posts: 231 | From Australia | Registered: May 2008 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

It CAN become permanent....but I don't know of any way you can tell if it's temporary or permanent at the time. Err on the side of caution!!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

atheana
LymeNet Contributor
Member # 14273

posted

I am on Flagy 1500mg per day.

My body is killing me,so I take tramacet(which helps alittle).

I don't know if I'm doing the right thing.

I have to have therapy on my right shoulder because is hurt to move (I think this starting before the flagy).

Low WBC.

I suppose I am just trusing my LLMD.

Last time I saw him my shoulder hurt he wanted to give me a shot of some type of steroid.

Should I run?

Atheana

Posts: 196 | From from a far | Registered: Jan 2008 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

quote:
Originally posted by atheana:

Last time I saw him my shoulder hurt he wanted to give me a shot of some type of steroid.

Should I run?

YES!!! NEVER let a dr do that to you. It's the Lyme and will settle down when you get well. If it doesn't, go get an MRI and see what's up!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

atheana
LymeNet Contributor
Member # 14273

posted

Thank you-Lymetoo [Smile]

Posts: 196 | From from a far | Registered: Jan 2008 | IP: Logged |

richedie
Frequent Contributor (1K+ posts)
Member # 14689

posted

I am starting Flagyl next week and am a bit worroed because my LLMD mentioned the neuropathy can be permanent. I was told, if I feel anything weird that could be this, to stop and call the office. I just hope it helps, the pain has been tough.

--------------------
Mepron/Zith/Ceftin
Doxy/Biaxin/Flagyl pulse.
Artemisinin with Doxy/Biaxin.
Period of Levaquin and Ceftin.
Then Levaquin, Bactrim and Biaxin.
Bactrim/Augmentin/Rifampin.
Mepron/Biaxin/Artemisinin/Cat's Claw
Rifampin/Bactrim/Alinia
Plaquenil/Biaxin

Posts: 1949 | From Pennsylvania | Registered: Feb 2008 | IP: Logged |

dmbfan
LymeNet Contributor
Member # 11948

posted

i was given a 7 day course of flagyl for a vaginal infection. After 4 days i felt like i was dying. Couldn't take the last two doses.

I'm off it now but still have the same dizziness and skin "pain" I did when i was on it. Also, my stomach hasn't rebounded. Its been a week since i've been off it. back on adoxy now.

i don't know if the effects will be permament, but they are taking a while to go away

Posts: 368 | From freehold, nj | Registered: May 2007 | IP: Logged |

richedie
Frequent Contributor (1K+ posts)
Member # 14689

posted

I am really scared to start.

--------------------
Mepron/Zith/Ceftin
Doxy/Biaxin/Flagyl pulse.
Artemisinin with Doxy/Biaxin.
Period of Levaquin and Ceftin.
Then Levaquin, Bactrim and Biaxin.
Bactrim/Augmentin/Rifampin.
Mepron/Biaxin/Artemisinin/Cat's Claw
Rifampin/Bactrim/Alinia
Plaquenil/Biaxin

Posts: 1949 | From Pennsylvania | Registered: Feb 2008 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

You need to kill out the cyst form with SOMETHING. Just keep an eye on it. I took it for 2 yrs off and on. Maybe longer.

good luck!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

mtree
LymeNet Contributor
Member # 14305

posted

just started Flagyl [bonk]

so far I'm still alive...

[Smile]

mtree

--------------------
worrying about tomorrow takes its strength away from today

Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008 | IP: Logged |

CherylSue
Frequent Contributor (1K+ posts)
Member # 13077

posted

I've heard to start with very small doses and work up gradually to tolerance. Some can start out well from the first. Make sure it's brand name Flagyl,took not generic.
CherylSue

Posts: 1954 | From Illinois | Registered: Aug 2007 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

quote:
Originally posted by CherylSue:
[QB] I've heard to start with very small doses and work up gradually to tolerance.

ABSOLUTELY!!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

Geneal
Frequent Contributor (5K+ posts)
Member # 10375

posted

Flagyl also can contribute to serious yeastie beasties!

1500mg of flagyl a day???!!!!! [Eek!]

Holy Cow!

That is what my LLMD uses for a remission challenge.

When I took flagyl, I found the extended release tabs easier.

They are more expensive, but so worth it.

I took one 750mg a day.

In fact I still take one 750mg flagyl a week to prevent c. diff.

I remember the headache from heck the most.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006 | IP: Logged |

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