lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
I keep getting tested for Mycoplasma he is telling me but the spelling is M.pneumoniae.
The tests just came back again 2.63 IgG and 982 IgM which would mean Im positive again.
I have tested positive for this 7 or 8 times! What gives?
Does Biaxin hit this? My LLMD says that the lyme isint an issue any more its this mycoplasma, could it have been this all along?
All I know is when I take a little bit of biaxin now I get a herx and then when it clears I feel terrific!!!!!! My skin feels cooler, my brain feels better, my vision is better, my energy is better, my strength is better, my pain is less.
Yet that all goes away if I keep taking it. I have been doing this cycle for years and Im sick of it!!!!!!!
What cant I get rid of this mycoplasma. Is it in every single cell of my body just messing me up and wanting me to be a depressed and in pain miserable excuse for a human?
Posts: 2905 | From New England | Registered: Sep 2004
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posted
I have had problems with mycoplasma too. Trying to treat now.
You might want to look up a doctor named Garth Nicholson. He's not an LLMD, so please, nobody chastise me for posting his name.
He's done much research on mycoplasmas--I believe he has a research center, and has published a lot on how to treat them.
Posts: 322 | From Venice, CA | Registered: Sep 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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This is the site for researcher/author Garth Nicholson, Ph.D.
--Mycoplasma species panel of 4 pathogenic mycoplasmas
(M. fermentans, M. pneumoniae, M. hominis, M. penetrans)
. . . .
=======
There is also a site for Chlamydia Pneumonia (Cpn) at www.cpnhelp.org
Many lyme patients also have Cpn (& or mycloplasma pneumonia).
Pneumonia has many different species and strains. It's never just one word and each strain can be quite different.
Pneumonia can be spelled a couple different ways with a switch of vowels at the end.
========
Wiki is a good place for an introduction to pneumonia. But don't stop there.
Nicholson (the researcher above) has gone much deeper into the chronic nature of it. He is not alone in exploring the depths and extent of such chronic stealth infections, however, (as with lyme) most doctors do not understand that chronic active infection state that eludes detection. And most doctors think pneumonia is just a lung infection.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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This article has much attention on both lyme and Cpn. I don't recall if he discusses mycoplasma pneumonia, although he is stellar in that area of research - absolutely tops in his field.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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TIMACA ??
I hope she stops by. She has great information on the "adjunct" chronic stealth infections. Her member number here is #6911 - you could pull up a post of hers and PM her.
Many LLMD do know all about mycoplasma but if yours does not, does he have recommendations? It would be best to find a doctor who has successfully treated many others.
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Question: how do you (or your LLMD) know that mycoplasma is your problem? What are the symptoms attributed to mycoplasma anyway?
I test positive for this too but my LLMD always blows it off saying that m. pneumonia is not necessarily specific to ticks and that a lot of the healthy population have it. Also he said that Lyme abx would hit it.
Posts: 3528 | From US | Registered: Apr 2007
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Hoosiers51
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Member # 15759
posted
Yup CD57.....that is sort of the impression I get from my doc too. I tested IgG positive for Myco pneumoniae. I was on Zithromax at the time of the test though.......
I have taken a lot of drugs that should theoretically kill it though....so i'm not sure how much i should worry?
I am also just worried about viruses.
Posts: 4590 | From Midwest | Registered: Jun 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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It's helpful to read as much as possible from the researchers who have studied mycoplasma. That will give a better idea of what path to take.
kelmo
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Member # 8797
posted
Garth Nicolson was our first contact on the road to treatment.
When my daughter got ill, myco pneumonia was the only positive, along with positive ANA titers.
I think almost everyone gets it in their mix of viruses and bacteria.
Posts: 2903 | From AZ | Registered: Feb 2006
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Well my LLMD said that Lyme was no longer a problem for me because I test neg- through Iginex now. However I tested positive 7 times for mycoplasma both IGG and IGM and he says that most of my symptoms are from this now!
They both feel identical.
I still think that M.Pnemoniae is the lung infection.
How do we trully know what is making us sick?
I still herx like H*** on ABX like biaxin, its not just some allergic reaction, and I trully feel better once it clears.
Its just when I take abx in a large dosage I get a toxic sickness that doesnt help matters. This has been going on for years.
Thanks!
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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Ok so I just learned that the lung infection pnemoniae has nothing to do with the mycoplasma pnemoniae, its just a name.
The lung infection can be caused by viruses, bacteria, fungi or idiopathic oregen!
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
bump
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
pump
Posts: 2905 | From New England | Registered: Sep 2004
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posted
son has a positive on this too, for the first time in years of lyme and co's.
anyone have information on LLMD interpretation of this infection and neuro-symptoms?
he also has m.fermentans, which is known by LLped to cause allot of neuro-problems.
what about the pneumoniae?
mo
-------------------- life shrinks and expands in proportion to one's courage -- anais nin Posts: 8337 | From the other shore | Registered: Jul 2002
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