posted
I saw my eye doctor on Friday and he thought I had some odd nuero things going on. He started asking me questions and I'm not sure he believes in Chronic Lyme Disease, but he does know that I have it.
He's asked me to do an MRI (which I did) as well as do some blood work for Whipple's disease. Does anyone have any experience with this?
I read through the symptoms on wikipedia and it matches a lot of my symptoms, but I think that my symptoms are mainly due to babesia and lyme.
Any thought would be great or information I could share with this doctor.
Thank you, Lindsay
Posts: 484 | From Burlingame, Ca | Registered: Sep 2005
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bettyg
Unregistered
posted
lindsay,
i'm aware of this being mentioned on here lately, so i went to top and did a SEARCH
typed in whipple's disease medical text any date left membership no. blank, click send
and it brought up this results; to read them, you will have to do what i did above, and then click on links shown ok!
You searched for keywords: 'Whipple's disease' | 5 matches found New Search
Topic Date Forum
Whipples Disease??? 03-02-2009 Medical Questions THIS IS YOUR POST!! Betty
Went to Yale for Vertigo: results find nothing 27-01-2009 Medical Questions
Infectious Disease Doctors.....why not??? 19-09-2007 Medical Questions
eosinophil associated GI disorders 06-08-2007 Medical Questions
whipple bacteria 30-09-2005 Medical Questions
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
...Interesting how the lyme and cos/whipple symptoms overlap isn't it??
And the treatment is the same...long term abx...
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
A lot of doctors think of Whipples Disease long before Lyme, and other Lyme Disease patients have gotten the same testing only to see it come back negative in their specific cases.
The interesting thing is, in each case the doctor always came back with the blood work saying "Wow, I swore it was Whipples."
In other words, it can't be Lyme. You get the point.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
A couple years ago when I had just been tested for Lyme I was chit chatting with someone in Starbucks. He ended up being an infectious disease doctor. I didn't know about ID docs denying Lyme at the time and mentioned being tested. He said to look into Whipple's Disease.
Funny these docs are willing to believe we have a long term infection, but it can't be Lyme.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Interesting. I will press on with lyme. I already have an LLMD. I have been in treatment for 3.5 years and I have been like a ping pong ball-healthy then not healthy-now after 3.5 years of abx and IV Rocephin for 15 months I am back to square one.
I have hives, chronic muscle spasms, severe fatigue, trouble with sleep, nubness tingling, tons of brain fog etc. My LLMd thinks there might be something else going on, so I saw this neuro eye doctor.
He is intrigued by my case. He's not saying I don't have lyme-he's just trying to see if there is some thing in addition.
I will keep you posted. I am trying to get a SPECT but it seems impossible to get approved.
I started Mepron and Ketek on Sunday and I am hardly herxing. Yet a week ago I was on amoxy (from dentist) just for 5 days and I was barely functional.
I am so confused!
Posts: 484 | From Burlingame, Ca | Registered: Sep 2005
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
Whipple's Disease -- a rare condition that prevents the intestine from properly absorbing nutrients, caused by infection from bacteria called Tropheryma whippelii. The disorder mainly affects middle-aged white men. Whipple's disease is extremely rare.
There is a saying in healthcare, that when you hear hoofbeats, think horses, not zebras. In other words, think Lyme before you think of Whipple's disease.
-- Sharon
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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