posted
has anyone been diagnosed with vasculitis without
having any of the skin changes? and did you have
to have a blood test? i dont have any of the rash
or purple spots but other symtpoms, so just
wondering, thanks for any input,
Radha
Posts: 392 | From New York | Registered: Dec 2005
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Vasculitis is inflamation of the vascular system,
It is well noted in medical literature of arterial vasculitis in the brain from Bb.
You can do a google and find a large amount of cases.
I don't know what skin changes you refer.
You do not have to have a rash or spots to have Lyme disease.
Blood tests miss most cases but worth a try at a Lyme specific lab like Igenex.
But if I had vasculitis I would want the antibiotics no matter what, especially if steroids made it worse.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Vasculitis is inflamation of the vascular system,
It is well noted in medical literature of arterial vasculitis in the brain from Bb.
You can do a google and find a large amount of cases.
I don't know what skin changes you refer.
You do not have to have a rash or spots to have Lyme disease.
Blood tests miss most cases but worth a try at a Lyme specific lab like Igenex.
But if I had vasculitis I would want the antibiotics no matter what, especially if steroids made it worse.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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ALso I had reduced pulse detection in the lower half of my body. The doc looked for strength of pulse points with a stethoscope from the groin, behind the knees and the ankles. I did not have any further bloodwork for the vasculitis.
Turns out it that in my case it was Bartonella that was flaring badly and causing it. Resuming Bart treatment helped.
Fuzz
Posts: 503 | From Maryland | Registered: Oct 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Funny they mention Syphilis as a cause but not Lyme. Are you still being treated for Bb or just Bart?
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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I'm in treatment for everything right now Lyme/Babs/Bart/Mycoplasma Pneumonia. My docs told me that they've seen vasculitis particularly with Bart, but also they see it with Lyme.
In my own particular case, it was Bart that was causing mine.
Here is a medical article on chronic vasculitis and Bart, in case you're interested:
Chronic Vasculitis and Polyneuropathy due to Infection with Bartonella henselae. Stockmeyer B, Schoerner C, Frangou P, Moriabadi T, Heuss D, Harrer T.
Dept. of Medicine III, University Hospital Erlangen, Krankenhausstr. 12, 91054, Erlangen, Germany, [email protected].
Bartonella henselae, the causative agent of cat scratch disease and bacillary angiomatosis, is associated with an expanding spectrum of diseases. Here, we report on a 40-year-old patient suffering from chronic recurrent painful ulcers of the toes, distal axonal sensomotor polyneuropathy and Raynaud's phenomenon. Biopsy of the sural nerve demonstrated an axonal neuropathy with a neurogenic muscular atrophy. Treatment with high dose corticosteroids had no beneficial effect. A biopsy taken from a recurring ulcer 7 years after the beginning of the disease revealed superficial ulcerated hyperkeratosis with subepithelial proliferation of small vessels compatible with a diagnosis of verruca peruana, however, without detection of microorganism. Serologic analysis revealed an elevated IFT titer of 1:1,024 against B. henselae. Treatment with erythromycin induced healing of the ulcer, remission of the vasculitis and the polyneuropathy, and a decline of the IFT titer.
This case illustrates that B. henselae infection should be considered in patients with vasculitis and polyneuropathic syndromes.
PMID: 17401716 [PubMed - in process]
Posts: 503 | From Maryland | Registered: Oct 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Of course I'm interested.
I might be there one day myself.
I hate it for anyone.
This article is vague for me.
Do they mean they had sores that no treatment healed them
or that it took them 7 years before they switched doctors and finally got treated.
Sounds Lymie to me.
Sorry --I try to keep my sense of humor.
My grandmother had toxo for years DX by sight only, so it could have been anything, and the scratch on her ankle never healed.
She always had a sore there. And her ankles were huge and she had to have special shoes made for her.
Of course medicine was lacking back then and a lot of antibiotics were not rurally available in the early 70's.
And it was a Dr. who made house calls with a little black bag.
She also had the funny mottled skin but I never connected the two till now.
I always thought because I was just 10-14, it was because she was old.
Of course you have showed me it was not why.
She gave me my love of gardening and growing things.
That I haven't the strength to do right now but pray I will again.
While you are in treatment remember to keep your immune system up.
You got to do your work at that while the antibiotics are doing theirs.
And thank you.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Bart is the main culprit of vasculitus. There is a guy in Kansas that is the best at this test and reading it. He is lyme literate too.
Posts: 458 | From Miss | Registered: Mar 2009
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