posted
I am not an expert and others here have way more information than me.
It saddens me that children are exposed to this.
I would treat both if I were you.
I think most likely they would be fine.
I am disgusted at the moment. Children shouldn't be put through this.
Posts: 743 | From New York | Registered: Apr 2009
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
My children weigh 50lbs each.
One was just put on amoxi 800mg per teaspoon twice daily for an infection.
The math is easy to do.
However, I am not a nurse or a physician or anybody who can
Readily give advice regarding dosage.
Just wanted to share my children's dosage with you.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
whatayear, your kids need to be in treatment regardless of rash. And they need to get to an LLMD as soon a possible.
They could have more than just Lyme, in fact that is the norm to have coinfections! Just taking Doxy is not going to treat possible other infections.
Also, we can't tell you what the proper dose for your children is. You need to possibly call a LLMD Pediatrician and ask them to consult with your Ped until such time as you can get them in for an appt with an LLMD. There are other parents here who have done this.
ANYONE who is at risk for having contracted Lyme and/or coinfections needs to treat and needs to treat for FAR LONGER than the mainstream medical community understands. I believe ILADS suggests initial infection treatment for Lyme is about 3 months, but I could be mistaken. That does NOT include what treatment may be needed for other coinfections.
Time is of the essence! as I am sure you are aware as you have been here a while.
Just a helpful bit of advice, you will likely get more replies if you can break up your post (use the pencil edit function) so that those of us with Neuro-Lyme will be able to comprehend it. Sometimes people with late-stage Lyme cannot read large blocks of text.
Some people do better when you break your paragraph every 3 sentences or so. Just a suggestion. I had to skim your post for keywords as it was too much for me, and I think there are others here you might want to hear from who can't even manage to do that.
OH and please be advised that Lyme and coinfection testing is NOT to be used to make a diagnosis, and it is a clinical diagnosis that should be made by a specialist.
ALSO, testing for Lyme within the first 6 weeks will not be useful, as it looks for antibodies to Lyme, and they are not produced until AT LEAST 6 weeks after infection!
posted
Does anyone know of a llmd in VA for kids? I can NOT go to see dr jones i dont have the money! thanks
Posts: 229 | From front royal, VA | Registered: Jun 2008
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posted
I am so mad at myself I cant stand it, here
after everything ive been through I know about
lyme ive lived this hell and I was very carful
with my kids i honestly didnt let them go in the
grass as bad as that sounds. We just moved and I
wanted them to make new friends, we went to a
cook out two doors down and everyone said OH NO
TICKS ETC...and I let me kids play in a fenced
yard...and this is what i get I should have known
better...I just should have.. I am very good at treating
myself, I know my body and can listen to it and
have gotten myself out of this mess but I dont
know how to treat my kids or what do for cos etc
I feel lost and helpless just like i did when i
started this journey but worse becuase its my
kids I always said THANK GOD it was me and not
my kids and now here i am...
I am greatful that this has
been caught early and there was a bulls eye I and most
arent that lucky. I am very into treating natural
and the thought of having to dose them in ABX
makes me feel like an even bigger failure. I have
let not only myself but my kids down by not preventing
this from happening. Now instead of being a
family of 2 with lyme disease we are now a
family of 4 infected by lyme disease.
Posts: 229 | From front royal, VA | Registered: Jun 2008
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Morgan, it is NOT your fault. It is unnatural and unhealthy for children to never get to play outside. Most of us would not be afraid of a fenced in yard.
What you need to do is just spray them for ticks before they go outside and check them carefully before they go to bed each night. You know the drill. Have them shower or bathe if they've been outside, take off clothes immediately as they come in, and put them in wash.
They can't live in a bubble, you just have to take precautions.
For all you know a tick could have fallen off another child and landed on a seat your son sat down on next in school. There is no way to avoid them, none that I have found.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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adamm
Unregistered
posted
Not sure what appropriate pediatric dosing is--maybe check Dr. B's guidelines.
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I can tell you what my son is on, buy he is on different meds, and he weighs more than Jake. He is about 70 pounds, and takes Minocycline, Mepron, and Zithromax.....but is about to start on IV Rocephin.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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