posted
I'm sure someone like Betty or Meg or Tincup will know this but are there some fairly well known cases, like Dr. B or Weintraub or some one, or several who went into complete remission by just using a monotherapy of antibiotics like doxy or amoxi or something.
I'm sure I read that somewhere. Or am I wrong?
Posts: 199 | From utah | Registered: Jan 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
They say so. I'm amazed. It seems like the rare case from what I read here. People here on 10 IV drugs, endless anti-malarials, etc. and somehow Dr. B and Pam beat late-stage Lyme with Ceftin? HOW? Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
That was the only part of the book that seemed completely fabricated. I repeat, seemed.
Posts: 713 | From Los Angeles | Registered: Oct 2007
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posted
I remember a talk by Dr. B where he said they used to treat this way more often. That this would get rid of borrelia, but slowly, over a very extended period of time. Then the body will get rid of the rest.
He was talking about it like it was how they used to treat prior to learning about coinfections, cysts, etc. not like it is how they treat now. He said in the talk that now we don't have to treat as long as we used to.
I wish I knew when this talk was from .... I saw it a long time ago, it's just that this part of it made a big impression on me, so I remembered it.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Personally I would rather just try the Ceftin and see if it works long term. I have been treating co-infections first for a very long time and it seems that monotherapy makes more sense to me. The more I think about co-infections, the more I think the body can handle them once the major problem is dealt with.
Anyone else think this way?
Posts: 770 | From USA | Registered: Jul 2006
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Hoosiers51
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posted
I sometimes think that way too Myco.
It is clear that coinfection treatment does help some people....
...but for others, it seems like at a certain point if treating babs or bart is not bringing progress, it has to still be the Lyme or another infection or something else.
I think we have to try it all and not rule anything out. Pulsing, monotherapy, coinfections, etc.
I did monotherapy for about 9 months, and I do think that I got better during that time. I had done other treatments first. The monotherapy was a nice break.
Maybe cysts are a problem now, but.....eh. I will get around to those too. Maybe I should have pulsed some flagyl too during that time?
Posts: 4590 | From Midwest | Registered: Jun 2008
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Hoosiers51
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posted
I just want to add, that something is obviously screwed up with our bodies. And we need to know the cause. (maybe it's lyme or a mystery bug)
Because babesia shouldn't be THAT bad, as it is for us. Healthy people should be able to fight it off, at least some strains of it.
Bart should go away in a healthy person in a matter of a couple months on antibiotics, if that. If Bart survives longer than that, there are other problems keeping it around. That is MY personal opinion.
Posts: 4590 | From Midwest | Registered: Jun 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
So many here act like they 'KNOW' it's Bart or Babs or Lyme or ???. We don't. Tests are unreliable, symptoms overlap, total presumptions. We're always chasing our tails unless someone has denching night sweats.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
This may be taking the thread in a slightly different direction, but...
So much of it seems random. Which antibiotics work. I've read so many who have taken 7 or 8 different abx, but ONE helped the most. Now, did the first 7 set them up for success, or is it something in the strain or the person's physiology that makes it so?
It's so hard for me to understand the level of guesswork involved. I mean, some LLMD's seem to have a great feel for these things, very good at the 'art' of it--what will work, etc.
But with the confusion between illness itself, herxes, bad reactions to medicine and the myriad other issues (metals, etc) that are brought up here....it's a mess. Some of the side issues seem to be ignored by LLMD's who have success, and others see them as absolutely critical for healing.
Many here do so much testing, some of it seems dubious to me--and I'm open-minded.
I think Western medicine is lacking in many regards, but still, some part of me cannot comprehend how out to lunch it is with this.
If we have toxins, and that's what's making so many of us nearly non-functional, why can't they be measured and identified? I mean, I believe it could be a real issue, but could it possibly be that difficult to have some emprirical measure of them?
Yes, I know some studies find neurotoxins, etc. But if they are so real, easy to identify, and fairly well-studied, why can't they be measured? I mean, checking a detox pathway genetic variance is a bit of a convoluted/speculative way to explain WHAT is happening.
I mean, I'd be happy to go to the hospital for some long/short length of time (a month, say)....have them give me some course of antibiotics and WATCH what my body does. I don't want to have to weigh whether I'm having a heart attack after I've taken something (abx) that I've taken at other non-lyme points in my life with no problem whatsoever.
If something is needed to calm my system or a possible over-response in cytokines, then....they could MEASURE it and take appropriate action. Sedate the hell out of me, I don't care. They do it for people in other medical situations. It would beat the heck out of thinking I MIGHT get better in two years of misery, fear and despair on my couch....wondering if I'm 'herxing' or just simply getting sicker.
There's gotta be a better way to measure effectiveness in treatment.
The way this is handled--and I'm not directing this at the doctors, or even the IDSA or insurance--is sort of beyond my comprehension.
This is venting a bit, but the fact that this is a faith based illness makes me crazy. Faith that the testing is right, that lyme is actually the thing that has flattened me, faith that....in the concept that 'okay, take these abx, etc for 3 months, go home, try not to die, push through....and then we'll essentially guess at what to give you next...." seems like insanity.
I realize people DO get better in this process, but I gotta say, day to day, when I'm weaker and weaker, and watching my life fall apart in slow motion (though not so slow these days)....it just doesn't make much sense to me.
Posts: 322 | From Venice, CA | Registered: Sep 2008
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posted
That is why I asked. I want to be believe I will get better but I see people here on IV and taking a bunch of other things along with herbs and supplements and nothing helps. I say to my self, I can't do that, for a variety of reasons, so I probably won't get better. But then I read or hear that someone got better by much simpler means and I wonder if I can too.
Its all so difficult to understand, and very hard to keep having faith in.
Posts: 199 | From utah | Registered: Jan 2009
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