seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I absolutely cannot get past 3-4 days of Clindamycin 600 mg/Quinine 325 mg daily. By day 3 or 4, I'm toast. I was feeling decent after three days (which was my limit last cycle). I thought...well, I'm winning this.
Woke up today feeling like death came over me. OMG. My joints are popping like CRAZY everywhere, very stiff, neck sounds like rice krispies, severely cold (body temp dropped to 94.3 under armpit), head pressure, so tired I could barely get out of bed today. I've never been that tired. I felt like the walking dead.
Is this normal for a Babs herx? I took a day off the meds and may take two per my LLMD's office. I can't go 10 days on this med w/o stopping once or twice. If I keep going through this, I feel like I'm going to croak.
I took charcoal, chlorella, lemon water, benadryl, etc. Nothing helps. Iodoral helped my body temp a bit (only thing that ever does). IF this is a babs herx, these are absolutely brutal. Malarone didn't do anything like this to me. What gives?
I'm starting to think maybe I'm just not tough enough to beat this disease. When I read what Groovy2 did and was on the brink of death fighting this....scary as hell. Is that what it takes to beat this? Hell, I don't even know if I have Babs - no positive tests in any way, but some symptoms fit.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
You are doing better than I did.......by the second day I was where you are.....and i was taking half the dosage of Clindamycin. I also had a HORRENDOUS headache. I tried it two different times with the same results.
My LLMD had me skip the protocol and go on to bart treatment.
Apparently, many people have fairly severe herx's from this, but honestly I consider myself to be pretty tough, and I don't know if I will be able to take it.
-------------------- TL Posts: 365 | From OK | Registered: Jul 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Sorry to hear you have been through my nightmare. I handle Clindamycin by itself quite well up to 900 mg daily. It's the addition of Quinine that really livens things up.
I feel like if I keep pushing through this and go on to day 5 or 6 or 7, I could be in the ER real quick. It's a scary feeling, especially the head sensations.
Was Bart treatment better for you? I'm guessing you may be seeing the same LLMD I am. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Whenever my daughter or I are herxing too much our LLMD reduces the dosages.
My daughter has been on IV Zith and Mepron for three weeks to knock out the Babs and is still herxing quite a bit.
The LLND recommended K-drain and L-drain by Transformation Enzyme Corp. and 600 mg. Magnesium Citrate to keep the bowels moving.
If she would allow it, we would do colonics. I have found colonics and infrared sauna to help with herxes. Gotta get those toxins out!
Good luck. Don't push yourself past where you can handle it. Take good care.
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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posted
Babesia treatment kicks my butt. I could not, just could not handl mepron...I got way sicker than the norm. I was practically hallucinating.
I'm not on the meds that you are, Seek, but am on Alinia and Art right now. It's a rollercoaster, sometimes really awful, but not as bad as mepron.
I've read Jay's experience. It seemed to help him remarkably...but I have to say, to me, no one should have this experience without being in the hospital. I mean, from what he wrote (and I'm NO expert), but it seemed genuinely life-threatening.
I just don't GET this illness. It's not manageable like many other diseases. It's guesswork and misery to figure out what you even HAVE. And....I mean, what disease except resistant Tuberculosis has a treatment regimen that lasts for years?
And with TB, those people are more functional than many of us.
Could it really be that difficult to figure out a treatment that doesn't nearly kill us, or make us want to kill ourselves? And....I mean, for anything else I can think of, if you are in tons of pain and suffering, there's some kind of care that goes along with it.
Really, Jay's thing is remarkable. But also...it just seems barbaric to me.
Sorry, got off on a bit of venting there too.
Posts: 322 | From Venice, CA | Registered: Sep 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I did OK with low-dose Malarone (2 tablets daily). I tried Mepron, but couldn't go above 1/2 tsp 2x daily w/o ill stomach events. My stomach STILL has not recovered from the Mepron 5 months later. I was taking Zith with it.
I do what I can about the toxins, but I'm pretty sure my detox system sucks big time.
Michael, I'm sorry you suffer so much w/treatment. I hear you about Jay. I think that is absurd what he went through. I'm glad he got a payback at the end and is living normal life, but I don't let one treatment success like this dictate my course of treatment. He's obviously not the norm.
I still have no idea what to think about these TBDs. I think SO SO many here misinterpet herxes for medication side effects as things like quinine are probably toxic. LLMD's glamorize the almeighty herx at times. There HAS to be a better treatment than the nightmaare we subject ourselves too, but the medical community just cares less.
It's amazing Marcie says Lyme was cured in a week or less in Romania. I guess if we adopted that, LLMD's would sure lose business. I wonder how happy they'd be about that?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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quote:Originally posted by seekhelp: It's amazing Marcie says Lyme was cured in a week or less in Romania. I guess if we adopted that, LLMD's would sure lose business. I wonder how happy they'd be about that?
If that's really true then sign me up I'll fly to Romania.
Posts: 655 | From USA | Registered: Sep 2007
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posted
Oh, BTW Bart treatment is going MUCH better
-------------------- TL Posts: 365 | From OK | Registered: Jul 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I am so glad to hear that Tif. I was going to do Flagyl next, but I may shift to Rifampin and see how I respond. I have never treated Bart before and don't know if I have it. I suspect I may. I may be in for a real ride!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Since Mepron or Malarone is not available in the country I am now living, the the doctors here who are Travel Medicine Specialists two of them who are talking about my treatment with the Quinine is worried about the side effects of the drug itself.
I haven't started the Quinine treatment for my Babesia, yet it from what the my doctors and I have discussed with their background in using Quinine in malaria patients that this drug DOES HAVE alot of bad side effects.
Posts: 24 | From JAPAN | Registered: Apr 2009
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posted
son is now herxing on hepapro artemisinin; we changed to this instead of the artemisinin from nutricology after reading Dr S newest Babesia book. Son is also on mepron, biaxin, bactrim. Has not really herxed much before.
Posts: 758 | From now TX | Registered: Mar 2001
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