posted
HI,How many have lost not only part of their lives. BUT,do yo Lyme unable to keep up wit another,people scared away when found out. Loss fam. due to almost being afraid, to too long NO CURE. kids that are afraid may have to take care of. Or husbands,wives. That forgot For better or worse in sickness & health vows??
Need to hear stories how destroyed you life? Not to mention financial every high costs, unable to work to support yourself. Even if you got better how would someone higher you under circumstances???
Hugggsss, to all in Need Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
| IP: Logged |
karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Yes, I have lost years. But still hoping to recover.
Never give up. Imagine, one day we probably find a cure.
Posts: 1834 | From US | Registered: Oct 2008
| IP: Logged |
karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Yes, I have lost years. But still hoping to recover.
Never give up. Imagine, one day we probably find a cure.
Posts: 1834 | From US | Registered: Oct 2008
| IP: Logged |
Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Like I said in another post, I can push myself with work and exercise out of necessity but have no energy at all for any kind of social life. It gets very tough... Thank God for DVDs and TV...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
| IP: Logged |
posted
Hi, I am not giving up I wake up so ill & so much pain if I sleep at all. Sometimes almost afraid to fall asleep/ knowing what have to look forward to. I look out side at the wildlife sometimes dolphins,with a nice warm breeze, I get my mind right no matter how sick I feel. Know there are others out there mornings so bad. Yeash, just keep plugging wait for meds to kick in that only take edge off,nothing much for nausea, I am going to try new 1. UGH, another pill. Between all meds,herbs & vit. can make crazy alone ry to keep track...lol
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
| IP: Logged |
posted
Be glad you can look at dolphins and wildlife. I'm too ill to go anywhere and all I get to look at is concrete and paint .... so I just look at the TV or books instead Posts: 499 | From Indiana | Registered: Oct 2007
| IP: Logged |
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Oh how I feel your pain. Funny, before I logged on I was just thinking about this.
Cody never got his 8th grade school picture. I never sent the form in, nor for the class picture, nor to leave him a message in the yearbook, and he missed his dance this week because I forgot.
In the past, before I was sick, not only were my kids impeccably dressed on picture day, they were sent to school with a comb in their pocket and we had practiced smiling for the camera.
This is just to show the DRASTIC decline in my parenting abilities. Cody graduates in less than two weeks. No gift, no party, just hoping I don't have to attend the ceremony in a wheelchair. This sucks. Then his birthday is less than two weeks after that.
I used to get printed invitations for my kid's parties, make a lavish array of foods, invite everyone, decorate perfectly.....
All their clothes were clean and matched, organized neatly in their drawers, NEVER would you find an article of clothing in their rooms that didn't fit.....
Ugh. I am nothing now. I have missed milestones I can never get back. When Ryan graduated from 8th grade we threw a huge cookout and party for all his friends, plus a family party.
Most of the time I'm happy if I am just able to keep up with Cody's meds each day, and I pretty much suck at that too.
My cousin died this week. I missed the funeral and wake. She was very special to us.
My stepbrother's mother died a few months ago. When my stepsister died 3 years ago, I sent them each flowers. I didn't even send them a card, and couldn't attend that funeral either.
My nephew got married in Maine last August. Nope, didn't go.
In fact, I can't go to anything. I can't even get out of bed. What a suckfest, huh? It's taken me several days to convince Cody to move his Playstation into my bedroom just so he is in bed with me so I can be near him.
This week Ryan and I laid in bed together and picked out a necklace for his girlfriend's 8th grade graduation. We had a wonderful talk and good time.
These are the only moments I can look forward to....and pray and pray that it isn't this way forever. I know I have hope, if I can just get a PICC line and IV antibiotics......I'll just keep going from doctor to doctor until I can get there.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[confused]](graemlins/confused.gif)
![[group hug]](graemlins/grouphug.gif)
![[Frown]](frown.gif)
.... so I just look at the TV or books instead ![[Smile]](smile.gif)
Printer-friendly view of this topic