posted
I thank my "lucky stars" that I found this forum last year around this time. The information and support I have found here continues to help me slog through the mire that is tick borne illness.
For you who haven't heard the story, my adolescent was diagnosed by a marvelous LLMD last August. Positive for babesia, bartonella and "indicated" for Lyme on lab tests.
The LLMD has treated with a variety of supplements, abx and mepron/malarone, based on symptoms and improvement of health. My kid has gone from house-bound to attending school and maintaining good grades under the care of this wonderful doc. We are looking forward to a "normal" summer with camp and a nice vacation in late August. (Haven't been able to travel much the past couple of years due to the illness.)
Several people have told me that this LLMD works wonders with coinfected/multiple-infected patients. It took the LLMD a couple of months to work out the "3 Bs", but the LLMD didn't stop there!
After targeting the 3 infections over 8-months, and my kid reaching 80% of normal, the LLMD still continued to look for pieces to the puzzle for health. (Still having some fatigue and skin rash, plus headaches. None as severe as before treatment, but more than normal.)
LLMD sent us to a 2nd LLMD to review the health info from scratch and determine if anything might have been missed. 2nd LLMD ordered tests for the immune system strength, environmental toxins, and two tbds not previously screened: RMSF and Q fever. The RMSF came back positive!
Luckily, the kid is already on doxy, so the battle is engaged. I've just scanned through the old posts on RMSF and I feel up-to-speed for the LLMD appointment tomorrow.
THANK YOU ALL FOR YOUR SUPPORT AND CONTRIBUTIONS TO THIS FORUM!!
Thank you for saving my child! Thank you for saving my sanity!!!
Lymepool
Posts: 170 | From New Jersey | Registered: Jun 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
WoW. What a great LLMD. It is great you did not
stop treatment and great you and he was able to
find it. As you can see here these guys and dolls
are modest but they all deserve that pat on the
back. GOOD GOING EVERYONE
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
That is amazing and so encouraging. I am sending you a pm. thanks.
Linky
Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
WOW! First of all wonder news that your child is improving!! I have 2 kids sick along with myself. It's rough to see your kids sick and not be able to do things. My youngest was out of school from March until the end of the year.
Second, RMSF can be deadly! My mom has it. Thank God your LLMD found it!!
Third, could you PM me who you see? I am looking for a new LLMD for my kids? Yours sounds wonderful!
Thanks!! Amy
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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bettyg
Unregistered
posted
lp,
so happy the 1st referred you to a 2nd finding RMSP!! yes, that is a deadly illness.
did you use the SEARCH at top of page
type in RMSF medical subject any date leave membership no. blank
read all posts/replies; if none, use BACK button and change subject to text; click search ... and read comments.
best wishes tomorrow; glad we have been able to help your son & you on his lyme journey xox
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Ticks are dirty!
Glad your adolescent is under such good care.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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