Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I haven't been around these parts for a while, so I thought I would give an update of how I am doing.
I was actually doing very well when I stopped coming around. I wasn't near cured, but I was managing the illness. And then everything turned.
I moved from DC to California at the end of September to be with my then fiance (now husband). That's when things went down hill. I was travelling every week, sometimes twice a week, for work. I was already losing weight and underweight when I moved. I got down to 98 pounds in December and told my boss I needed to stop travelling.
I did meet with a new LLMD shortly after moving. She referred me to somebody else to work on chelation. He tried to boost my methylation system to get my body to start pushing out the heavy metals.
His treatment knocked me out. I was exhuasted and in intense pain. My labs showed no change in heavy metals or other indicators, so he wanted to put me on an IV treatment, but that turned out to be soy based and I am allergic to soy. Luckily, at that point I was already moving back to DC so I could go back to my LLMD here.
Turns out he had me on supplements my LLMD said were probably making me sicker. He moved me off of methyl B-12 and onto another form of B-12, that my LLMD told me is harder for most people to absorb.
So now I'm back "home" and back with my doctor that I trust. I'm married, so the wedding stress is gone. I only travel about once a month. So things should be better. I feel like I have so far to go to catch up with my health though.
The one good thing is that I was put on Flagyl for a bad UTI and I had no herx. So I think the Lyme load may really be down.
The bad news, I tested positive for Mycoplasma and an overgrowth of Klebsiella. I am trying to decide what type of treatment I want to pursue for the Mycoplasma so I can start my treatments.
So that is where I am and what I've been doing. Not sure how much time I'll have to visit here because I'm so tired. But I need the support and advice, so I'll try to come around.
-A
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Hey Aniek, sorry that you're going thru a rough patch. The good thing is that you achieved good health before so you know you can get there again.
Also really glad that you're back with your old Lyme doc! Hang in there - we're all pulling for you!
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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posted
Congrats on your wedding. Glad to hear you are in good hands,medically.
Posts: 8430 | From Not available | Registered: Oct 2000
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Thank you guys. It is a relief to be back in good hands. Unfortunately, my doctor is now recommending a treatment that I don't know if I feel comfortable with and can't find any information on. So my initial relief turned into limbo.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Welcome back Aniek!
It's nice to see you... although I'm so sorry to know you are declining again.
Huge congrats on the wedding, and yes, the reduced stress should help so much.
Can you share what the treatment is that you are questioning w/out giving too many identifying details?
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Melanie,
The treatment is infusions of herbs and homeopathic infusions. The herbal infusions are called MTE. This supposedly increases the effectiveness of the oral antibiotics and reduces the length of treatment to about 6 months.
-A
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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I really missed you and I'm glad you're back with us here on the LymeNet Flash ... but sad that you're going through more medical challenges.
Congrats on your wedding ... I hope your spouse gives you plenty of support while you work your way to wellness.
I missed ya, lady, ... we all need your help and we know you need our help and input.
Remember ... take care of you,
-------------------- Lou B Posts: 2200 | From Mount Hope, New Jersey, USA | Registered: Oct 2000
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Hmmm, that is most certainly a new one to me. I did a little Google-ing and found these quotes from an archived conversation from 2004. You may want to wade through the whole thing to read all the comments:
"Plant extracts of the European mistletoe (MTE), Viscum album, the most widely used cancer treatment in Germany, have been used in European countries as sole intervention or as adjunct to conventional cancer therapies for more than 80 years. Preclinical data suggest immunostimulatory and cytotoxic effects of MTE."
This summary contains the following key information:
Mistletoe is a semiparasitic plant that has been used for centuries to treat numerous human ailments. Extracts of mistletoe have been shown to kill cancer cells in the laboratory and to stimulate the immune system.
Mistletoe is used mainly in Europe, where a variety of different extracts are manufactured and marketed as injectable prescription drugs. These extracts are not available commercially in the United States.
Although mistletoe plants and berries are considered poisonous to humans, few serious side effects have been associated with mistletoe extract use. The use of mistletoe as a treatment for cancer has been investigated in more than 30 clinical studies. Reports of improved survival and/or quality of life have been common, but nearly all of the studies had major weaknesses that raise doubts about the reliability of the findings.
At present, the use of mistletoe cannot be recommended outside the context of well-designed clinical trials. Such trials will be valuable to determine more clearly whether mistletoe can be useful in the treatment of specific subsets of cancer patients.
End of summary."
...
Now, if you Google "mistletoe homeopathic infusions" You get several hits with much more information.
I think it is all very interesting, but certainly worth you time to read the latest non-biased information that you can find.
Posts: 7052 | From Colorado | Registered: Mar 2003
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Lou - Thanks for the comment. So nice to hear. Hopefully I can find the time and energy to help out around here, and hopefully y'all can help me as well.
Melanie - that is interesting. I don't think mistletoe was listed in the herbs involved in this, so it might just be coincidental. I'll ask my doctor.
I've now heard from 2 people who use the treatment for babesia and one woman whose daughter uses the treatment with what seems like good effect. I still wish I could get more information of what types of safety studies have been done (the curse of being a lawyer, I read too many cases in law school of people who died from non-FDA approved infusions).
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Well... your concerns are certainly valid. We have seen too many 'miracle cures' come and go around here and some with dire consequences.
When I searched for MTE and infusions, Mistletoe was what came up, yes it could be coincidental. I sure hope you can find more input soon.
Best to you, M
Posts: 7052 | From Colorado | Registered: Mar 2003
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