posted
So a prescription drug commercial has me worried. One of the symptoms was involuntary muscle movements. You should report these as these may become PERMANANT.
I know, I know...magnesium...magnesium... I try! It was hard on the doxy, but I tried...and I'm still trying... I'm on as many supplements as I possibly can tolerate or afford for now.
But I still have large involuntary muscle movements every day, and sometimes they get really bad and make a scene.
I'm concerned they may never go away.
Please tell me you had this and it went away!
-------------------- Never doubt in darkness what the daylight proves to you. Posts: 418 | From Utah | Registered: Apr 2009
| IP: Logged |
ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
Jasmin, see my response in the thread "Horrible twitching in temples" by seekhelp.
Severe myoclonus can become permanent and are an indicator of deep nervous tissue infection. All the supps in the world won't help. Mg only goes so far.
Please tell your LLMD as soon as possible.
ping "We are more than containers for Lyme"
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
| IP: Logged |
dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
mine went away...Had it myoclonis for about 20 yrs. Lessened alot last few years... IV Tigecyl really knocked it out. Haven't had the "jerk" for a year.
Posts: 2675 | From ct, usa | Registered: Jan 2004
| IP: Logged |
posted
ping, Thanks, I saw that post and appreciated it there, too. I talked to my doctor about it, and he said take more minerals. I think he just knows we have to treat the infection.
dmc.... Thank you so much for sharing. Twenty YEARS? Am I reading that right? I have no right to complain about three or four months then.
-------------------- Never doubt in darkness what the daylight proves to you. Posts: 418 | From Utah | Registered: Apr 2009
| IP: Logged |
Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I've had severe myoclonus for about three years. It seemed to coincide with my Bartonella test turning positive. It got worse on Bart medication but eventually calmed down on Bart med, but now is getting worse again. It's a central nervous system infection from what I understand.
I've never had it respond to magnesium, etc., although I take those supplements and even have had some IM magnesium.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/