LymeNet Flash: Do You believe this? Should we go?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Do You believe this? Should we go?

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Topic: Do You believe this? Should we go?

Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

posted

http://www.columbia-lyme.org/research/cr_research.html

Thank You Rick at Lymeinfo at Yahoo Groups

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008 | IP: Logged |

gemofnj
Frequent Contributor (1K+ posts)
Member # 15551

posted

The screening was July 12. [Frown]

Posts: 1127 | From atlantic city, nj | Registered: May 2008 | IP: Logged |

Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

posted

All of them? DATE & TIME: Saturday, July 25th 10:00am-12:30pm
LOCATION: The office of :
Dr. Andrea Gaito
211 South Finley Avenue
Basking Ridge, New Jersey

No appointment needed.
Questions? please call 212-543-6510 or email [email protected]

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008 | IP: Logged |

nenet
Frequent Contributor (1K+ posts)
Member # 13174

posted

They used a C6 ELISA to screen for eligible cases? That's an ancient and terribly inaccurate testing technology. If they only took people who screened positive via this test, how do they know they aren't only getting a certain strain that is more likely to produce a positive C6 ELISA?

Besides this, the ELISA has worse odds of catching a true positive Lyme case than a coin toss.

Why wouldn't they have used Western Blot, and tested for more than one strain? This kind of screening is narrowing the field of research resources once again, and limiting the scope of what Lyme disease can be, right out of the gate.

I'm not making myself very clear this morning, but this has long been a large part of the problem with Lyme research.

--------------------
Dr. C's Western Blot Explanation

Lymenet Success Stories

ILADS Treatment Guidelines

Medical & Scientific Literature on Lyme

"Long-Term Antibiotic Therapy Improves Persistent Symptoms Associated with Lyme Disease"

Posts: 1176 | From KY | Registered: Sep 2007 | IP: Logged |

pryorka
LymeNet Contributor
Member # 13649

posted

I hear ya nenet it makes the whole thing somewhat pointless and a waste of time and money. I was thinking this center at Columbia had more knowledge than this.

Posts: 499 | From Indiana | Registered: Oct 2007 | IP: Logged |

seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

posted

Yes,

I would definitely participate if I lived close enough to one of the evaluation sites.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004 | IP: Logged |

nenet
Frequent Contributor (1K+ posts)
Member # 13174

posted

Pryorka, I think this may be a case of funding determining the scope and direction of research.

I'm glad you were able to grasp what I was trying to say - my brain is frustrating the heck out of me today.

--------------------
Dr. C's Western Blot Explanation

Lymenet Success Stories

ILADS Treatment Guidelines

Medical & Scientific Literature on Lyme

"Long-Term Antibiotic Therapy Improves Persistent Symptoms Associated with Lyme Disease"

Posts: 1176 | From KY | Registered: Sep 2007 | IP: Logged |

aileenhome
LymeNet Contributor
Member # 3960

posted

There was a large advert in our local paper for the July 25 session. Still considering whether it would be worthwhile to go.

Posts: 133 | From Far Hills, NJ 07931 | Registered: May 2003 | IP: Logged |

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