posted
I had a brain spect scan done and the radiologist reported that I had regional vasculitis. My understanding was that vasculitis was a reduction of blood flow/inflammation of the blood vessels...
Question: If I have vasculitis in my brain, would I most likely have it in other places of my body as well?
The reason I ask is I have gastroparesis and a lot of muscle tension/soreness... I have heard that when blood gets cut off to certain organs/tissues, they stop working. Could this be a reasonable assumption?
[ 07-18-2009, 02:52 PM: Message edited by: Buster ]
Posts: 458 | From Miss | Registered: Mar 2009
| IP: Logged |
posted
^
Posts: 458 | From Miss | Registered: Mar 2009
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Vasculitis is an inflammation of the blood vessels.
Vasculitis in the brain can cause many problems, from mild to severe. They include headaches, behavioral disturbances, confusion, seizures and strokes.
posted
2 years ago, I found out that I had 70% blockage in my carotid artery on 1 side of my neck, reason unknown.
A year later I was diagnosed with Lyme, Babesia, Ehrlichia and Epstein-Barr Virus. It was then that I suspected Lyme was the culprit of my carotid stenosis, just couldn't prove it.
Re-examined my carotids last week. The side with the blockage got even worse, the other side went from normal to being even worse than the other side in 1 year---both sides with ulcerations now also. Both over 80% blocked.
After research by myself and the Neuroradiologist that read my exam, we found that chronic infections can lead to vasculitis which in turn results in atherosclerosis.
Also, the more serious the infections and the # of infections greatly increases your chances for developing life-threatening blockages in your arteries.
It is interesting how rapidly this developed in 1 year since I started treating Lyme and co's. I've read that biotoxins (BLP'S) that are given off when Lyme bacteria are killed are what trigger this inflammatory autoimmune reaction that causes vasculitis.
Carl
Posts: 67 | From south jersey | Registered: Jun 2008
| IP: Logged |
Shosty
Unregistered
posted
So would it be better not to have treated?
On the one hand, you say that research by you and the neuroradiologist found that infections can cause vasculitis, and on the other hand, you say that treatment caused your problem.
Can you clarify, because the implications of these two things are contradictory, and it is important.
IP: Logged |
posted
I believe that the problem was mainly caused by the infections, and that this process was accelerated during treatment.
Sorry for the confusion. I will try to get more information when I talk to my vascular doctor and my LLMD.
Posts: 67 | From south jersey | Registered: Jun 2008
| IP: Logged |
posted
I don't think I have clots or blockages... I think it is just inflammation that is reducing blood flow in the blood vessels.
I guess what I am trying to get at is, is there anything out there to help with vasculitis? Maybe if there was something to help, it would help the healing process that is taking so long for me...
Posts: 458 | From Miss | Registered: Mar 2009
| IP: Logged |
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
In the normal digestion process blood is diverted to the stomach during digestion. I don't really think vasculitis in the brain means that you have vasculitis in all your blood vessels. Vasculitis in the brain would obviously mess up the normal bloodflow in the body though which could indirectly be affecting the stomach.
Hubby takes Vitalzyme -- has been on that for a year or so. His LLMD just added Lumbrokinase. Hubby can tell that the lumbrokinase is also helping with his bloodflow issues.
One other possibility -- for the last 6 months hubby was on very low dose Benicar (5 mg 2 times per day). It acts as a vasodilator which will allow better blood circulation in the brain. Unfortunately this med lowered hubby's blood pressure too much and then he had side effects of dizzyness and orthostatic hypotension type symptoms.
You could also try some herbal things such as gingko or prickly ash. I plan to put hubby back on the herb Dan Shen -- it seemed to help with bloodflow to the G.I. for him.
I would also suggest antioxidants which cross the blood-brain barrier -- things like CoQ10 and pycnogenol(pine bark extract).
This is not medical advice, just my opinion based on hubby's experiences.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic