Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Hi,
So I just had my second cold laser treatment on Tuesday and yesterday and today I've had intermittent episodes of bone pain. Both below my left knee. I drove to the library yesterday even though I was herxing and felt crappy. Just before I got there, the bone pain started, had to limp inside.
Next stopped at fruit/veggie market, pain persisted, drove to one more store and it was gone.
This morning the pain started again.
A few weeks ago I was getting searing bone pain in 2 of my fingers, it was pretty intense, kind of like a tooth 'nerve' pain.
I don't remember if that pain was shortly after the first laser treatment or not.
Related to Lyme and co??? I guess part of me has been thinking that when I got my first myoclonus episode in May I should have gone to a Doc for at least a CT scan, but I didn't... and then I started feeling better.
I just hope I don't have another medical condition on top of Lyme, my PCP is NOT Lyme Literate and doesn't believe I have Lyme because of a negative Elisa. But she will schedule tests to rule things out.
gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
Migrating joint pain is definitely related to lyme!
Your pain can even continue throughout treatment.
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Thanks Gem!
The thing is, it doesn't happen at the joint, it's lower than the knee. I have had episodes of my right knee swelling and severe pain where I could not put weight on the leg.
I'm assuming this pain though is somehow Lyme related. I'm 30 years old...so I don't think it can be 'age' related!
posted
Ocean, I have had bone pain through the years with this lyme thing too. I attribute it to the Lyme, or bartonella. Mine started when I was in my twenties so, def. not age related either! It comes and goes and sometimes it is pretty darned painful! I have felt my left leg as if it is being mangled on the inside.
posted
I've had deep bone pain for years (I'm currently 30), and it's gotten worse along with the Lyme.
Given that my primary Lyme symptoms are neurological, it would make sense that my nervous system is all messed up and sending neuropathic pain signals. At least, that's the theory I'm working on.
Like you, I don't really have joint pain--it's like it's an electric current zinging in the bone marrow.
I tried gabapentin (rx) for the pain when it was really bad, but it made me a little loopy. It really worked on the pain, though.
Posts: 398 | From By the Salish Sea | Registered: Dec 2008
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Anna,
Yes, that is what it feels like...an electrical current! It's so sharp sometimes!
Could definitely be neuro lyme related, that is my main thing, that and fatigue (but I am doing better...I think I'm herxing right now due to treatment on Thursday).
Interesting that the gabapentin helped! If mine gets more widespread or constant I will try it!
My sed rate the last time I checked was 60, I am sure it's gone down since then.
But the one thing that has helped me alot is I drink alot of veg. juices and some fruit. This is why I believe my bone and neuro pain are very low. I am not much of an eater.
I can not prove anything now but, I really believe parasites are the missing link for me.
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