posted
OK - I give up. I have been in treatment for 4 years now and have kept up with walking, kayaking and ai chi because I thought I was helping myself.
My Dr. told me yesterday that by using my muscles, I was doing myself more harm then good. Gentle stuff is OK, but not to work the muscles.
He told me that if I want to go kayaking, to go and just sit in the kayak and not paddle!
Although I get relief from the myalgia pain, sometimes lasting for days, he says I am untimately doing more harm then good.
After doing some research,on Devin Starlanyl's site and others, it looks like he may be right. I need to accept the fact that I can't be who I used to be and do the things I want to do, whether or not I feel that they are helping. I have pretty much given up on other activities; biking, socializing.... HOWEVER, I am not going to give up all forms of exercise and turn into a couch potato. Cut back, maybe. Quit - never.
His specialty before becoming an LLMD was rehabilatative medicine - he told me he IS the myofascial guy and to take his word for it.
Comments?
-------------------- "Few of us can do great things, but all of us can do small things with great love". Mother Theresa
quote: After doing some research,on Devin Starlanyl's site and others, it looks like he may be right. I need to accept the fact that I can't be who I used to be and do the things I want to do, whether or not I feel that they are helping. I
Burascano guidelines recommend intensive exercise . Though not aerobic one (so stuff like HIIT, weight lifting ).
Posts: 856 | From MA | Registered: Jul 2009
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
quote:Originally posted by coltman: [QUOTE] Burascano guidelines recommend intensive exercise . Though not aerobic one (so stuff like HIIT, weight lifting ).
And Dr. K.'s guidelines recommend moderate exercise, not to the point of exhausion. (I am not nor have I ever been B.'s or K.'s pt.)
Hard to know exactly where the lines are drawn, isn't it?
ping "We are more than containers for Lyme"
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
It's always been my experience that those who are able to exercise in any form do much better than those who cant. I find you doctor's opinion puzzling.
I always thought that since the spirochete is anaerobic that getting oxygen into the system thru exercise was of benefit.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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losferwrds
Unregistered
posted
I do cardio and resistance training, I think just the fact that your sweating and getting your heart rate up benifits in detox, now obviously if someone has lyme arthritis or POTS they are not going to be able to do alot of stuff if anything, but I cannot see exercise in anyform being detrimental even if its just a walk around the block. Unless you go to the gym and then are bed ridden for a few days to recover or so fatiqued that you are simply too weak to do anything hoe can it be bad?
Burrcanos Protocol is a guideline just like the IDSA has their guidlines, many people regard it as gospel but how many people are following 100%.
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I just do what I can when I can and am so thankful for what I can do.
I like being outdoors whether it is in my power chair or on my feet. Good for the moral.
But, I do need to listen to my body and brain and stay within my limits as I do more harm than good if I try and push through things like I did before lyme and company.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Is the myfascial pain/ muscles he is particularly concerned about. Stretching gently is OK - repetive working of the muscles is not. Exercise is good at relieving symptoms, but repetitive stuff should be avoided. Things like shoveling, raking, vacuuming....(kayaking)
Damned if you do, damned if you don't. I have Always been an advocate of "use it or lose it"
-------------------- "Few of us can do great things, but all of us can do small things with great love". Mother Theresa
aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Go with your gut Hurting,
The only time I curtailed activity was when I was on Flagyl or Tindamax because of the possibility of tearing a tendon.
I spent so much time in bed and on the couch during my early treatment days that anything I can do physically is such a simple joy for me.
I think the benefits of sunlight, increased oxygen intake, etc. outweigh the risk or 'muscle damage'.
Which, BTW, I don't understand where your doc is coming from on that.
I've never heard of anyone being restricted on their activities.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6138 | From Columbus, GA | Registered: Jul 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
It takes time. I went years before I am where I am now.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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