posted
Please let me know if you are using Plaquinil (sp) for the cyst form of Lyme. If yes, do you think it is working?
Any thoughts?
Posts: 86 | From California | Registered: Oct 2009
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
It's a commonly used cyst buster often combined with Biaxin. It has helped many when used in the right kind of protocol. What else are you taking Hopeful?
Plaquenil affects everyone uniquely. Many tolerate it very well. It's been used for years as an arthritis med. The major risk with Plaq is possible eye damage, but this does not usually happen unless the med is used for many months and even then may not cause problems necessarily.
Personally, plaq was very tough on me. I had eye strain and other side effects within the first few weeks of starting.
Don't let this deter you from trying it though. It works well for many.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
hello, im new to the group, sixgoofykids can I ask if you had any side effects using plaquenil? my doc wants to put me on it with Biaxin but im nearvous about the side effects. thanks Sandy
Posts: 1 | From Jersey shore | Registered: Nov 2009
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posted
Thanks. Lymeorsomething. I am currently 200 mg a day (may increase) and 500 mg of Zith every other day. I will be adding IV Rocephin hopefully today.
I don't have an LLMD and am currently using the "fly by the seat of your pants" method. I plan to see an LLMD but there is no one close by.
I have been on Rocephin before. My thought is that it won't work if there is no cyst buster. My doctor doesn't like Flagyl. He gave me Plaquinil for recently diagnosed Sjogren's syndrome and probably also Lyme but he doesn't believe in the cyst form of Lyme.
cheers
Posts: 86 | From California | Registered: Oct 2009
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posted
My LLMD uses it too and I have been on it for a long time. I know it hit something hard in my brain. When I first went on it----- I herxed hard but only for a few days.
I had the base line eye exam and visual fields test that is recomended with this medicine.
Stacy
Posts: 476 | From Columbus, Ohio | Registered: Aug 2007
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posted
I do not have a problem with plaq, I take 200mg 2x per day
Posts: 315 | From USA | Registered: May 2005
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I haven't had a problem taking plaquenil.
I am on it now and I was on it at the beginning of my Rx too.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I'm on Plaquenil as well and it's been fine.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
Sandy, I was on it for 20 months and never had a problem with it. I liked it, actually.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Of all the posters.. who use or have used plaquenil.
Has your doctor told you specifically that he wanted you to take it for cyst busting?
I have heard that use and also anit protozoan and also anti inflammatory and also it changes the PH which in turn helps the other abxs your taking work better on killing the infection.
???
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
I'm on plaquenil right now. I'm ab out to start flagyl, I think, Wedneday.
I'm pumped! I know this is the next step and I'm ready.
Plaquenil, Rocephin, Doxy- that's what I'm on now and have been for 2 months (my first 2 months of treatment).
step 3 = 3rd month = flagyl time
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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