posted
With a sense of adventure I recently began 1/2 tab of flagyl daily then up to 1/2 tab 3X/day then finally up to 4 tabs=1000mg / day. Added zithro and built up to 500mg/day for 5-6 days then took 2 day break. . . got whacked big time with Bart sx eg shin pain and plantar pain but worse than ever before. What seems weird is getting Bart sx presumably from the flagyl (zithro has some Bart activity too though) It is as if knocking back Borrelia is a signal for Bart activity to increase. Has anyone had a similar experience where they got Bart Sx while treating Borrelia with Flagyl?
Trying to Learn. . .
Beachinit
Posts: 448 | From Downeast Maine | Registered: Jul 2009
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
yep. Flagyl brings out all kinds of joint and other pain for me- and sometimes I'm surprised that it seems to bring up the foot pain. It seems really related to me pulsing flagyl and not to whether I'm on my Bart drug or not (Rifampin/bactrim). I can't make heads or tails of it, actually.
Mine's the foot pain, too- same thing you're describing (I haven't had shin pain in years, not sure why not, but I'd had it in the past when I was treating with herbs only).
-------------------- Symptom Free!!! Thank you all!!!!
Thanks for sharing your experience. I'm not sure I'll be willing to try the flagyl again after this happening. I just stopped the flagyl and started bactrim in addition to the zithro. Besides foot pain also have more foot and hand tingling than before. The stabbing pain I had a few days ago has let up though.
Working thru the pain,
Beachinit.
Posts: 448 | From Downeast Maine | Registered: Jul 2009
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posted
Flagyl is a pretty necessary drug for the cyst form!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Flagyl can kill Bart and other co' according to my LLMd.
I know that "classic" symptoms are said to be shin pain, heel pain of Bart. But I don't know that they really are Bart symptoms. Here is why.
When I beat Bartonella (b.henselae - strain) I began treating Lyme w/Bicillin and then I had those same symptoms really flare. So I don't know that I am 100% convinced that heel pain and shin pain is only from Bart after my experience.
Dr. Burrascano lists the following as Bart symptoms - the neuro/CNS issues were VERY bad with Bart for me:
BARTONELLA & ''BARTONELLA-LIKE ORGANISMS''- � Gradual onset of initial illness. � CNS symptoms are out of proportion to the musculoskeletal ones- if a patient has no or minimal joint complaints but is severely encephalopathic (see below), then think of Bartonella/BLO. � Obvious signs of CNS irritability can include muscle twitches, tremors, insomnia, seizures, agitation, anxiety, severe mood swings, outbursts and antisocial behavior. � GI involvement may present as gastritis or abdominal pain (mesenteric adenitis). � Sore soles, especially in the morning. � Tender sub-cutaneous nodules along the extremities, especially outer thigh, shins, and occasionally along the triceps. � Occasional lymphadenopathy. � Morning fevers, usually around 99. Occasionally light sweats are noted. � Elevated vascular endothelial growth factor (VEGF) occurs in a minority, but the degree of elevation correlates with activity of the infection and may be used to monitor treatment. � Rapid response to treatment changes- often symptoms improve within days after antibiotics are begun, but relapses occur also within days if medication is withdrawn early. � May have papular or linear red rashes (like stretch marks that do not always follow skin planes), especially in those with GI involvement.
tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Interesting post...I recently did some electrodermal testing with my entire family and it showed flagyl hit bart in one of my boys and hit lyme in the other! This was the first time I EVER heard that Flagyl could hit bart so I was pretty skeptical.
I think I even posted the next day here asking if it could hit bart and people only said it hit lyme. I love to hear that a LLMD thinks Flagyl can hit bart.
So, I think it's possible that beachinit and Maria may be actually treating their bart with Flagyl, if the bart symptoms are coming out! Then again, I have found that once you knock down one infection, the other starts to surface, but this sounds a little suspicious. Usually it seems that it takes a little longer for this to happen.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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posted
Well if flagyl hit Bart before affecting Bb does that mean Bart is predominant bug at this time?
Lymebytes treated with bicillin though and got a Bart type flare of symptoms which makes me think these bugs are communicating with each other more rapidly than we could imagine. Then again Tick Battler may be right and it was just the flagyl hitting the Bart directly that caused the foot and shin pain.
Thanks for the input all.
Beachinit.
Posts: 448 | From Downeast Maine | Registered: Jul 2009
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Haley
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Member # 22008
posted
I know Flagyl is an important part of treating Lyme. I would be cautious if you are getting a lot of tingling. Too much Flagyl can cause permenant neuropathy. It happens in a high percentage of people.
Posts: 2232 | From USA | Registered: Aug 2009
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CD57
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Member # 11749
posted
My LLMD says Flagyl treats bart. Makes sense that you would get sx flaring with it.
Posts: 3528 | From US | Registered: Apr 2007
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posted
Well I tried flagyl and did get neuropathic symptoms and that is why I stopped. I new it was reputed to be nasty so I started with only 1/2 tablet the first day. Tingling before flagyl had been fleeting, sporadic and in varied places and appendages. After flagyl the tingling became symmetric and distal greater than proximal then followed rapidly by stabbing pains in feet and calves etc. I knew to stop at that point and I hope everyone else dose too.
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