posted
Hi! I'm new to the group, and I have some questions.
I have not been diagnosed with Lyme - all tests have been negative, and all drs have "poo-poo-ed" the idea that I could have Lyme, yet I have continually worsening symptoms that to me indicate Lyme.
To those of you who believe (and may have a sense of humor - left), even in a "hypnosis state of higher-self" questioning, my answer to "what is wrong with me?" -the answer- I heard the "Put the lime in the coconut" song clear as someone singing it to me!!! How can you refute that??? Haha
Back to my question, I had read about "liver cysts" being a part of this. In 2007, I was hospitalized with a ruptured ovarian cyst. At which time, they discovered additional "unsual" cysts on the ovaries and cysts on my kidneys -questionable PKD -Polycystic Kidney Disease -problem is it is usually heridetary - no family history here.
Now in 12/09, CTs show additional cysts and now involving the liver also. I did go to a kidney Dr, but that was a total waste of time as his response to me was "see ya' when you need dialysis!" Trust me I won't go back!
The tick bites (multiple) go back to ones I remember in 2002/03 and more recently. I didn't have a "rash", but the bite caused an unbelieveable sore that took "forever" to heal. I do have diagnosed Fibromyalgia, CFS, and other similar symptom driven illnesses that only seem to be getting worse and more confusing with no "proof positive" test results.
Does any body have more info or experience with kidney or liver cysts? If so, what are you doing? I do prefer more natural ways of resolving my issues if possible as my body doesn't tolerate pharmaceuticals well.
Oh, by the way, I do have many animals (dogs and cats -cat scratch???) and live in a country setting and ticks LOVE me!!! Please let me hear from you, Lorraine
Posts: 238 | From Jackson, TN | Registered: Mar 2010
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Hi Lorraine,
Pretty much any medical issue can be lyme-related. Lyme bacteria is a destructive and virulent disease. Often the bacteria is compared to syphilis because they are spirochetes (spiral shaped) but Lyme has more than 250 genes, whereas syphilis has like 25. That is to give you an idea just how virulent borrelia burgdorferi (LD) is.
My husband had kidney, liver and even brain cysts, long before he was diagnosed w/LD and my sister too - she also has LD. So they could be related.
If you remember being bitten you should see a Lyme literate Md, especially if you are symptomatic to be tested through Igenex Lab and find out if you do have lyme and co-infections. You can find a Lyme literate Md by going to www.ilads.org and clicking on the contact page - you can email or call them.
The link below nearly has everything there is to know about Lyme and if you don't find it be sure to check the Resources link that leads to other reliable websites.
Lyme is a serious infection that can go on a lifetime untreated. But it effects everyone differently from minor and liveable symptoms to bedridden sick and worse.
posted
The CT scan report said "innumerable" cysts - too many to count. I've had pain in the back - at the kidneys- but my NP doesn't seem to worry - not her kidneys!!! Thanks for the support, Lorraine
Posts: 238 | From Jackson, TN | Registered: Mar 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sorry to hear of all this. Just be sure to avoid both Ibuprofen and Acetaminophen. Curcumin (Turmeric) would be a far better choice for pain relief. ---------------
Excerpt: . . . "I was taking Tylenol like I was supposed to, by the label," he said. A few days later the then 37-year-old Benedi was in a coma and in desperate need of a liver transplant. . . .
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I have 3 liver cyst.
However, I believe having benign cyst is not that uncommon. Anyone can have them, it doesn't have to be related to LD.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
Liver and kidney cysts are very common, but in my case, my doctor told me that it's not so common to have them at my age. At the time, I was only 23.
Lymers
Posts: 287 | From Humboldt County, CA | Registered: Jul 2009
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
My kidney cysts are gone after two year treatment with HH ( Zhang).
Posts: 1834 | From US | Registered: Oct 2008
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Sorry, but what is HH(Zhang)? I've not heard of that... yet.... but I'm still new to this, though I can quote on Fibromyalgia (when the brain fog doesn't do me in.....hahaha).
Posts: 238 | From Jackson, TN | Registered: Mar 2010
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I have a liver cyst or two also.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- TnFlowerChild,
HH is an extract of Houttuynia, an herb used as PART of an overall protocol described in a book on Modern Chinese Medicine and Lyme by Dr. Z. HH is the brand name of the Hepapro formula for that.
The herb, then, is also suggested as PART of other plans with various other LLMDs whether they suggest the Hepaparo HH or another source of Houttuynia.
Oh, I'm not sure by the way you stated it but you do know that "fibromyalgia" is an umbrella, or a catch-all term. Many who were dx (diagnosed) with FM have some underlying infection such as lyme, other tick-borne infections or other chronic stealth infections such as Cpn, HHV-6, Mycoplasma, etc. which most good LLMDs would also consider in an assessment.
"Fibromyalgia" is a term invented to get rid of patients with stealth infections or mercury toxicity or adrenal dysfunction (all of which go with lyme). "Fibromyalgia" is a term invented to market drugs that are hard on our bodies but keep us sedated enough to just shut up.
There really is no such thing as Fibromyalgia. There are reasons for the pain, etc. that "FM" patients experience. Get to the underlying reasons and those patients get better and won't need the "FM" drugs for the rest of their lives.
Now, this road is no walk in the park but it is certainly worth finding out the underlying cause of debilitating symptoms.
I mentioned "stealth infections" above. Stealth means, hidden from detection (by both immune system and from normal lab testing), sneaky but able to bring great destruction.
I hope you are getting good medical care as you figure out what is going on. But, it does not sound like it as you stated above:
Quote: " . . .I have not been diagnosed with Lyme - all tests have been negative, and all drs have "poo-poo-ed" the idea that I could have Lyme, yet I have continually worsening symptoms that to me indicate Lyme. . . . " end quote.
You would do best to FIND A GOOD LLMD for a full assessment. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Yes I DO need a full assessment by a GOOD LLMD!! Know any? Actually I did just get a list sent to me for the TN area as well as MS & AL.... out of TN, my problem will be insurance & then of course "cost"!
Since I am on disability already & the wonderful Medicare that the Congress just cut the payment to Drs on... around here "good" Drs aren't taking new Medicare patients... (again... thank your Congressman!) I don't know what kind of reception to expect and I can't afford out of pocket costs that get extreme.
I am NOT on the pharmaceuticals that TV sells to the public!! They don't CURE anything and only mess you up worse - been there done that... got the t-shirt!
I do believe in the power of the herbal medicine and would much rather go that route if at all possible, but in TN if you try to practice "natural" type medicine, you get run out of state by the "powers that be." We've lost many to Alabama.
Yes, I do understand the "umbrella" and I do believe I've got to get to the bottom of the problem - being pro-active in my own care is the only way I've gotten any answers at all.
Knowledge is power and this site/group has/is a powerful source of information. The people here are well informed - and I thank you (everyone!) for being here.
Oh, and check out the race car that Tincup has created on the NASCAR "design a car" contest - under General Questions - we need to spread the word and vote it in!
Posts: 238 | From Jackson, TN | Registered: Mar 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Antibiotics can be essential to lyme treatment, but with the support of certain supplements, that can be easier on your body.
There are various paths but don't rule out antibiotics. Herbs may not be enough in this case.
I understand the financial matters very well.
I'm too tired to figure out what links might help if you can't find a LLMD or LL ND. But, I'll give this some thought tomorrow.
For now, regarding kidneys, you might want to search the term "Salvia" at www.itmonline.org
more later - and others will surely have some ideas.
At the very least, OLE (Olive Leaf Extract), or Allicin (or Freeze-Dried Garlic) can be at least some help. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thanks! Understand the "too tired" all TOO well!!! I'm overwhelmed for the night myself... will check back tomorrow.
Thanks for your knowledge - I've gotten more info from you all than I did the nephrologist - he didn't know "QUACK!"
Posts: 238 | From Jackson, TN | Registered: Mar 2010
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How can you refute that??? Haha
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