Hi all, Ive had Diabetic PN for about 2 years without much luck in finding anything for pain releif. I was on Neurontin for a year with no luck. About a month ago I started a daily regimine of Alpha Lipioc Acid(ALA), Borage Oil (GLA), Benfotiamine (B1), Methylcobalmin(B12) and started a trial of Topamax.
Well over the past couple weeks the pain has gotten worse and Ive actually gotten new pains which I havent had before. Since I was able to toloerate Topamax well, My Dr. upped my dosage to 100mg and renewed my prescription a couple days ago.
Last night as I just happened to rub my toes cause they were tingling - usually they just burn - and I noticed I actually had some sensations! I could feel my fingers touching my toes. I had my wife do the Monofilament test and I scored all +s one one foot and 3 out of 5 on the other! I couldnt beleive it! 2 months ago, I scored all -s on both feet.
I seem to remember reading that nerve regeneration can be even more painful than the nerve damage itself and was wondering if any of you have experince this or similar?"""""
-------------------- 1999 CFS, 2002 CMV Myco pneumonia 1 year antibiotics on and off 2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics Posts: 328 | From somewhereelse | Registered: Apr 2009
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