posted
OK, since the art I now have all the same symptoms as I did two weeks ago on the malarone.
major depression/crying, rocking boat feeling, headaches, malaise,and i get especially worse after eating, major vision issues, anxiety, weird tingly feelings
I just spent hours crying and threatening to go off my meds and feeling like i dont believe i will ever get well.
Hubby kept telling me this is a herx, that i didnt feel this badly before going on the malarone, and now art. but I just cant believe it for some reason.
These were my original symptoms which got better for 6 mths on biaxin and amox. If I have babs and this is a herx, then how did I get better on non babs treatment?
maybe this is just the disease or bart or something.
If it is a herx, what can I do for myself?
Im taking fish oil, vit D (50,000 iu per week plus 5,000 per day), epsom salt baths, no sugar diet, coconut oil, multivit and drinking water all the time and trying to keep my blood sugar steady.
Nothing helps and I wind up in this dark place, feeling completely numb, angry, and basically suicidal. I mean, no i dont actually want to kill myself, but i dont want to feel this badly.
Thanks for all the help and support this past week you guys. I know ive been posting ALOT. Posts: 319 | From nj | Registered: Jul 2008
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
Coffee enemas and FIR saunas
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Did you start at a very low dose, just once a day? If not, you might back down a bit as you get used to it. Ramping up slowing is important.
I don't see any actual liver support supplement like Milk Thistle. THAT is very important and should help. What is the level of your magnesium intake - not just epson salts baths? You might need to increase oral magnesium. It will help with all symptoms.
You might also consider adding turmeric for curcumin.
Are you getting enough protein? We need more with a chronic infection - that also helps our liver.
Sometimes, just lying down with gentle music - in the dark - and just resting when you feel overwhelmed is key. Aggressive rest. Adrenal support as well with Cordyceps as the basic start. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Like keebler said if you are taking high doze of artem. cut back... I had to and now I can tolerate 2 twice a day. orginally I had to cut back to just one a day.
I even didnt pulse it for the first couple of months but I do now.
Also, I have found milk thistle at local drug store...if you can get it when they have buy one get 1 free it really helps with cost.
good luck, Karen
Posts: 423 | From Virginia | Registered: Nov 2009
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posted
Thanks guys, Im taking about 75 mgs of the art once daily. I am now taking a multivitamin in addition to beginning 250 mgs magnesium.
Im thinking today and tomorrow i wont take anything to give my body a chance to detox. I'll also give the milk thistle a try.
I woke up with a terrible headache, still feel the rocky boat and depression.
Since I started so low, Im thinking these are maybe just symptoms. i dont know. Although I NEVER had the rocking boat feeling ever since a few weeks ago beginning the Malarone. I also wasn't this depressed before.
If I knew this was a herx, and it was temporary maybe i could get through it. But not knowing for sure is killing me mentally.
Posts: 319 | From nj | Registered: Jul 2008
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posted
I always backed off the meds for a short period of time. For instance, I would stop the med until I felt better. Usually one to three days.
Then start right back up. Worked every time!
Did this with LLMD's guidance.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I second Tutu on backing off abx if needed for a few days. Wish I knew then what I know today. I was too busy putting more toxins in and my body had no clue how to get toxins out.
I learned much later after my 3 yrs of abx herx he!! that distilled water is great for clearing out toxins, 3-4 days at a gallon a day, then replacing elctrolytes. Chlorella is my detoxer today. 10 at every meal time and 10 before bedtime.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- About replacing Electrolytes, (as Pam mentions) and I'll add: be sure to avoid anything with dyes, corn syrup, any artificial sweeteners or artificial flavors.
Read food actually provides electrolytes. Pomegrante Juice is nice. Sea salt in moderation, low-sugar fruits, vegetables help, too. Be sure you are getting enough complex carbs, too. Quinoa is excellent for an amino acid helper with a good balance of non-gluten whole grain carbs.
As art pushed the C P-450 liver pathway, it is vital to have some good carbs to help keep the porphyrin levels down. Beta Carotene is very good, too.
Since milk thistle had not been employed before starting the art, when that is in place for a few days and you restart art, you should do better.
Ginger Capsules can help that "rocking boat" stuff - the inner ear is likely affected. Ginger is good with all kinds of vertigo and nausea. Capsules provide the best dose. Tea can help but the capsules are better.
Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thanks guys. hubby went out to get some milk thistle and im taking a break for two days off the meds, except the plaquenil since it keeps the pain away.
He is also going to pick up low salt/sugar veggie juice.
The interesting thing is when I stopped malarone after taking 1/4 of a 250mg pill for 5 days I got worse or maybe even the same, which is why I concluded this wasn't a herx.
Then going on the art has given me basically the same reaction, with the rocking boat addition.
I guess im confused if it was a herx, then why did I get worse after 4-5 days off the malarone?
SO assuming it is a herx and not lyme acting up or Bart, which isnt being treated right now except with Biaxin, I should feel good tomorrow. Right? Once the toxins clear out?
I felt this way for months when I was first treated and thought it was a herx, but it wasn't- it was symptoms. Symptoms that resolved once I got on biaxin and amox.
Now they are ALL back once I got on the malarone, and some of them had been getting worse before beginning it. WHich is why Im thinking maybe this is a relapse.
Please help me with my thoughts as I am all over the place and can't believe for some reason this is a good thing...
Posts: 319 | From nj | Registered: Jul 2008
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Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
Regarding milk thistle.
Mepron and Malarone have as their active ingredient atovoquone. Milk thistle decreases the effectiveness of atovoquone, so you should find another liver support supplement.
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
Oh, and did you call your doctor and tell them what is going on? Before you change or add medicine or supplement protocols, its always a good idea to speak with the doctor.
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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posted
I just called the pharmacist and she said the milk thistle interacts with xanax so I ll have to ask my doc before taking it. Thanks for the article.
The problem with my doc is he is 5 hours away and wont usually get on the phone, unless I speak to his nurse and she gets a message to him. She isn't there until wednesday.
Posts: 319 | From nj | Registered: Jul 2008
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