posted
Does anyone no how often babesia would flare. I think I read somewhere that it does flare but perhaps it was something else.
Thanks
-------------------- 1999 CFS, 2002 CMV Myco pneumonia 1 year antibiotics on and off 2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics Posts: 328 | From somewhereelse | Registered: Apr 2009
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
My now famous lyme doctor said babs has a 7-day cycle and a 14-day cycle.
First I experienced the 7-day cycle. I had a flare exactly the same day and time of every week. It lasted 48 hours exactly.
With treatment, this was greatly reduced.
Eventually, it moved to every other week for the flare (14-day cycle). Finally, it was gone and we knew treatment could end.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
I knew it!@*@*. My doc said babesia was gone.
It seems as though every seven days I do a dive. Would you mind sharing your flare symptoms and how you treated babesia?
I have been marking my calender and it seems like every Friday-Saturday. It is so good to hear that it lasts 48 hours, now I can work with a pattern.
Do you know of an herbal treatment?
Sorry for all the questions.
My doc has stated he does not do co-infections, he said that he does not want to become only a lyme doctor but I think he is being forced into it. He is the only doctor treating lyme in Toronto.
He has people travelling from very far away and when I had my picc line inserted at the hospital they said they were doing one a day for him.
Regards maps
-------------------- 1999 CFS, 2002 CMV Myco pneumonia 1 year antibiotics on and off 2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics Posts: 328 | From somewhereelse | Registered: Apr 2009
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massman
Unregistered
posted
maps - Micro-site from www.inno-vita.com is designed for parasites inside cells.
I feel the spleen also needs support at that time, and possibly kidneys + liver too.
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Haley
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Member # 22008
posted
I have been keeping a calendar with a graph of how I am feeling. I feel bad every 5 to 6 days. I don't know if it is a flare. It is not always exactly the same amount of days but close.
I am treating Babs and wanted to try TFs protocol so I am keeping track but I really don't know if it is Babs or not.
What are your specific symptoms when you have a babs flare?
Posts: 2232 | From USA | Registered: Aug 2009
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
With my babs flare, all I would do was lay. I would not talk, eat, drink, go to the bathroom, or anything. I felt I could not do any of these things; they were too much effort. And, mentally, I felt doomed. I felt like this was the way my entire life was going to be.
Even though I saw this lifting each Sunday night, I could not convince my brain when I was in a flare that it would pass. So, I guess you call that big time depression. It was HORRIBLE!!
When I reported it to my doc at next appt, he had me add artimesinin (a non-prescription herb) to encompass the sick time. So, I started it Friday morning because the flare always started Friday evening. I continued taking it until the flare was over.
The first Friday on art, it was like a miracle! Instead of the flare starting on Friday, it was delayed until Sat. afternoon and was mild and was over in 6 hours!!!!!
Each week, I continued to take the art Friday through Sunday, and each week the flare got less and less until it was just an overwhelming need to go to sleep for an hour or so.
Then, it started skipping weekends and I got the flare every other weekend (14-day cycle).
Finally, no more flare.
I took artimesinin twice per day on an empty stomach. Brand was AllergyResearchGroup, I believe.
My babs treatment was Bactrim DS (double strength) twice per day for almost a year.
My doc only gave me the Bactrim because I could not take zithromax. His preferred treatment was Mepron and zith. (If not zith, then biaxin, but I couldn't take biaxin either.)
Burrascano says art is a must when treating babs, and that certainly proved true in my case.
My doc says Bactrim DS will do the job on babs, but it takes twice as long to do it compared to Mepron/zith.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
massman, hailly, tf, thank you all, sorry have not been back wish i had a lap top for the days i can't sit here.
"With my babs flare, all I would do was lay. I would not talk, eat, drink, go to the bathroom, or anything. I felt I could not do any of these things; they were too much effort. And, mentally, I felt doomed. I felt like this was the way my entire life was going to be."
I think this is me but also have chills and neuro symptoms.
I have searched artimesinin but have not found much. Is this something I can buy and start treating myself.
Anyone no if I can add this on top of my iv treatment. More and more questions
-------------------- 1999 CFS, 2002 CMV Myco pneumonia 1 year antibiotics on and off 2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics Posts: 328 | From somewhereelse | Registered: Apr 2009
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Why couldn't you take Zithromax? Stomach pain?
Posts: 829 | From MD | Registered: Dec 2009
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Zith caused me to break out in hives.
Artimesinin can be ordered on line. Also, some vitamin stores carry it. I believe I got some at the Vitamin Shoppe.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Thanks, but is there somewhere I could read about how, how much to take and any warnings etc.
I am always a little concerned about trying something new.
-------------------- 1999 CFS, 2002 CMV Myco pneumonia 1 year antibiotics on and off 2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics Posts: 328 | From somewhereelse | Registered: Apr 2009
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I took 100 mg twice per day.
You can do a search on Lymenet using the word "artemesinin" or "artimesinin" (which is the way I often misspell the word).
Here is a recent thread that will come up on such a search:
Here is all Burrascano says about it under Babesiosis Treatment:
"Artemesia (a nonprescription herb) should be added in all cases." (p. 24)
Posts: 9931 | From Maryland | Registered: Dec 2007
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
maps,
I take Allergy Research Group Artemesia from the Vitamin Shoppe online.
Label says 1 cap twice daily. My LLMD told me to take 2 caps twice daily.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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