posted
I do. Can't stand it. Doesn't happen every night and goes in spurts.
I think it's hormone/endocrine related, but no proof of anything wrong with testing I have done.
I don't have sleep apnea, at least proven to have it, but I wonder if Lymies are more prone to develop something like apnea.
I know that I have mild reflux, so maybe that plays a part in it also.
Posts: 194 | From Colorado | Registered: Nov 2008
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I've been feeling "off" all day today.
I took a dose of mangosteen this AM because my eyes were really whacked out when I woke up, and I started feeling just funny after that.
Then around 3pm I took another shot of mangosteen, and about a half hour later I got the heart palps/racing pulse, weakness on my left side and shortness of breath.
Still don't feel right, actually. I'm wondering if I kicked something up and I'm herxing.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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posted
Yes yes yes! It's not fun at all!
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
I had this horrible problem over a year. It is slowly getting better since I started minocyclin. But I had to start on very low dose, as my bacterial load was to high. Is Rifampin getting some bugs out from the bones? I think it was bacteria.What time does it happen? I am so sorry for you, this is such a bad experience.
Posts: 1834 | From US | Registered: Oct 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Used to happen to me with untreated sleep apnea. I don't have the problem now that I get treatment for it.
I needed a sleep study to determine if I had it. I've read it is not uncommon in lyme patients.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
It can happen right as I'm falling asleep, or it can wake me up between 2 and 3am.
I've been wondering if something I'm taking is knocking bugs out of somewhere, between restarting Rifampin and taking mangosteen.
My left side is really weak again this morning, and I just feel off base.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Might want to look at the Organ Clock and see which organs are up and running in the 2-3 a.m. time period.
Might explain what is happening to you.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
Need more Mg b/f bed? I dunno, just a thought. Taking it tends to help me with palpitations, but I don't know if it would do the same for your situation or not.
Edited to add: could your CNS be causing this? Are you taking any benzos (ativan, xanax, etc.) or nerve-protection protocols like methyl B-12 IM shots? Just a ponder.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
Definitely no benzos--they throw me into panic attacks. No B-12 or anything either.
That seems to have settled down now. The only thing I'm dealing with now is vision issues.
Will it ever end?
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Sometimes I have trouble falling a sleep because of this!
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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