posted
I know you can't post names on here, but maybe you can PM me? I am just curious. If you lived in New York State, and if you could go to any LLMD (not necessarily IN New York, but in the Northeast), who would you go to?
I am not actively looking for an LLMD, as I really like mine...but it IS in my mind that I may eventually switch, for different reasons. Who knows...
I live near a bunch of LLMDs...several within an hour, several within 10 minutes, and several just a few hours away. I really want to know who is very highly recommended. I wonder if I am being stupid by not going to one who is closer than mine is.
Thanks for your help to anyone who can JL
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Julie, it is hard to say what doctor you might like best. We are all so different.
Some people need their doctors to be available and supportive at all times. Other people can be more independent, not calling between appts, etc.
Some doctors treat very aggressively with meds and herbs, others only use meds, others like herbs. You get the idea.
Since you live in NY you should try to join a local support group. They would be a great information source for you. They could tell you the pros and cons of all their local doctors.
I wish that there was a support group near me.
Posts: 5237 | From here | Registered: Nov 2007
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posted
lol I dont think anyone would post 200 plus times just to gain trust to turn in LLMDS..whom can be accessed easily in other ways
Posts: 42 | From Niger | Registered: Oct 2008
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julielynne4
Unregistered
posted
I definately understand the concern about my post - and definately not trying to compile a list of LLMDs.
I have suffered with Lyme, bart, babesia and ehrlichia since I was 12, have 4 children with Lyme and co's (congenital), I am currently herxing so badly from Mepron/Amox/Mino that I feel like I am losing my mind.
I have a wonderful LLMD who is 2 hours away, and although I adore her, I sometimes wonder if I should either find someone closer, or find someone who will just have a new perspective, and perhaps a new type of treatment.
I actually have joined a local support group, and I have no interest in going to the meetings anymore because I felt like I got nothing out of them - except when I was originally diagnosed. However, I might send an email to the group leader and ask for her opinion, although I am pretty sure I know who she recommends already.
I really feel like IV is the way to go, and I just don't know how to do this without selling the house. My LLMD has not put me on an antibiotic specifically for the Bart, which concerns me.
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Julie, have you tried discussing your concerns with your current LLMD? If you ask, she might be willing to change your protocol to address Bartonella along with Lyme.
You could ask for a trial of Biaxin or Zith with Rifampin or add a quinolone like Factive.
Posts: 5237 | From here | Registered: Nov 2007
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Consider yourself fortunate to have so many choices nearby!
Posts: 4035 | From Mississippi | Registered: Jul 2008
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julielynne4
Unregistered
posted
Yes - I consider myself extremely fortunate. I have friends throughout parts of the county who have to travel to other states to see their LLMD. I am incredibly blessed in that area. No question about it.
One person I know in California told me I am so lucky to be in NY - so close to a certain LLMD who she would love to go to.
I will talk to my LLMD when I go next - I appreciate your advice. JL
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Julie, coould you give me a report on your LLMD? I'm one of the list holders for our forum. We always can use a positive review these days! Just PM me if you feel like giving it.
Basically, tell me anything about her that you think someone would want to know who was considering her as their new doctor. Costs, kindness, knowledge, treatment, etc. The reports are all anonymous.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
I know of great llmd and a huge university program in NY. it's just hard to get in. I'll pm you.
-------------------- Blessings to you! Posts: 141 | From Southern California | Registered: Mar 2010
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
mcaringella,
There are two university programs in NY that come to mind: one is research only, the other is research, plus diagnosis and sometimes tx for IVIG---not a regular LLMD experience (and EXTREMELY expensive).
Posts: 3792 | From around | Registered: Mar 2008
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JL
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