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» LymeNet Flash » Questions and Discussion » Medical Questions » Losing voice a herx?

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Author Topic: Losing voice a herx?
wtl
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This is very troubling...

A few months ago I was frustrated with my wife taking abx without herx. Now I am frustrated with everything she takes that causes a reaction. (funny but not so funny)

The most recent event involves her voice - she almost completely lost it overnight, and it has been more than a week now, with no sign of it coming back.

She claims no pain in her throat, no other discomfort. Just her voice is gone, like someone has a damaged vocal cord...

Is this abx related?

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shadesofpurple
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I had/have voice problems.

Mine is not a herx, mine is a symptom. But I think mine is a symptom of Babesia / Lyme, not sure which, maybe both ? I have had issues with my voice for about 18 years, since I started treatment my voice has gotten better by HUGE leaps & bounds.

I had some complex tests where they stuck this thing down my throat up my nose & down my throat with a mini camera thingie and did tests looked for poylps, cancer, acid refux they looked for things i never heard of lol

No one could ever determine what was the problem , my vocal cords appeared to be fine.... my voice just wouldn't function properly.

I saw MANY DR's and specialists over the years and no one could figure it out. Sometimes it would get so bad i would just let my answering machine pick up all my calls and i would just e-mail people etc.

Since i started treating Lyme & Babesia I have gotten better, I still have problems, but no where near the frequecy or intensity. So in MY case I know it is related to the Lyme/Babesia cycling.

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nenet
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I had this symptom pop up frequently before treatment, and couldn't understand why my voice would give out so often if I talked for any length of time. Sometimes it would hurt, other times not.

Once I began Lyme treatment, I used to very often get a hoarse or raspy voice when herxing. Now it only happens rarely, but still because of a Herx.

I don't know if different antibiotics can produce a different type of herx, but I only got this herx symptom on Ceftin, though I have only tried Ceftin and Minocycline so far.


However, if she is on anything that could have a side effect of damage to tendons, you should check with her Doctor/LLMD or pharmacist. Some drugs can cause damage to tendons, and the vocal structure includes tendons.

In that kind of situation, it might be hard to tell what is side effect or what is herx re: the voice problem, so your LLMD may want to switch to another replacement drug to be safe.

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nenet
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Hey wtl - your mailbox is full [Smile]

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wtl
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The one at fault blames the other who's at same fault. [Smile]

I made some room for you now, nenet.

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wtl
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nenet - knock on your box again. I can't reply to yours because the box is full. You are a very busy netter. [Smile]
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julielynne4
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Glad to have run across this thread. I realized just today how I am frequently unable to speak loudly enough for my children to hear me. I sometimes cannot shout their name because i lose my voice. Throat doesn't hurt, not sick, but I am on antibiotics. Didn't realize it could be a symptom or part of a herx. [Smile] good to know
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nenet
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Sorry!

That's so weird, because I deleted several PMs, and only received 2 after that, so that doesn't add up that it should have been full again already.

I call lymenet shenanigans! [bonk]

Anyway, lots more deleted, so I hope it works now.

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wtl
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nenet - Guess they decided that you are a busy one no matter what. [Smile]

I sent it just now. I can't figure out why you are not getting my email though.

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Beachinit
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My hoarseness comes and goes, I am starting to see it in concert with airhunger and other Babs symptoms. It was actually there before I knew
I had babesia by slide test and symptoms. I am treating for Babs now so we'll see how and if it goes (away that is).

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Ideas not advice.

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MDW005
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wtl... I lost my voice for two months, I could only whisper. Mine was a symptom.

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God's promises mean you always have something wonderful to look forward to.

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shadesofpurple
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I have to say I am actually relieved that I am not the only one that had this odd symptom. My voice would just cut out on my mid-word and i had horrible times with this. Then there were times i would be fine. Repeat. It is irritating & embarrassing.

grrrr

I am hoping it will go away completely . I had this issue since about 1991 or 1992 and it still comes & goes BUT it has gotten a lot better since i started treatment.

Mine does get worse if I am not feeling well or am stressed.

I still don't know if this is a Lyme thing or a Babesia thing... or maybe both.

Do all of you with this voice issue have BOTH LYME AND BABESIA ????

I would be VERY intersested to know that detail. Thanks [group hug]

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shadesofpurple
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up

Do all of you with this voice issue have BOTH LYME AND BABESIA ????

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Consuelachacha
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I cannot even believe I woke up and saw this thread on losing your voice.

I lost my voice about 5 days ago or so. I have no sore throat or other symptoms.

When I have lost my voice in the past, it has only lasted a couple of days. This time is just will not come back.

I currently am not being treated for my late stage Lyme basically because I cannot find anyone to help me.

I am going to see my internal medicine doctor Thursday just to sit down with her and my labs from the Dr. that found my Lyme and ask her a page full of questions.

I just wanted to post that WOW, I do not have a voice RIGHT NOW and didn't know why and saw this post this morning.

Good luck to you.

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Sick and Tired of Being Sick and Tired!!

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nenet
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I don't know if I have Babesia along with Lyme - I tested negative for one of the strains, but we all know tick-borne infection testing is far from accurate/prone to false-negatives.

I do have some symptoms, like getting really overheated at night, and night sweats, just not drenching night sweats. I've also had bad air-hunger at the worst of my illness, but that has gone away with Lyme treatment, so i don't know what that might mean.

This symptom started decades ago, like in the late 1980s/early 1990s.

My voice symptoms have almost completely disappeared with Lyme antibiotics (over 2 years) - they only rarely pop up, and even then only temporarily, when I am Herxing. Now if it happens, it maybe lasts 2 minutes to an hour or two at most.


The only thing that has made it get better is treating the Lyme with antibiotics (I'm on Ceftin right now), and of course I have been eating a restricted diet due to new food sensitivities, but I don't know if that has anything to do with it, other than getting rid of my GERD/acid reflux, stomach ulcer/h. pylori infection, and esophageal spasms.

I also drink a home-brewed herbal Lyme detox tea and stomach/GI tea, which might be helping too, because they soothe and protect the throat, esophagus, and stomach.

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Dr. C's Western Blot Explanation

Lymenet Success Stories

ILADS Treatment Guidelines

Medical & Scientific Literature on Lyme

"Long-Term Antibiotic Therapy Improves Persistent Symptoms Associated with Lyme Disease"

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MDW005
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Shadesofpurple.... I had ehrilichia and still have lyme...no Babesia.

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God's promises mean you always have something wonderful to look forward to.

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Cattail
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I have Lyme only and developed the scratchy, horse voice, that came and went. It turns out that it was from Thyroid disease that was brought on by the Lyme.
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Keebler
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-
Inflammation is the likely straw to bring on laryngitis. However, any number of infections can be a cause. Perhaps, allergies. Or a polyp.

I've had laryngitis for a couple months at a time, several times. Voice rest is essential. I've not had doctors during those times so all bets are off about cause.

Is she on support supplements like Turmeric or Curcumin? That would help decrease inflammation. If she can get to a ENT (Ear, Nose and Throat) specialist, that would be good.

Not everything is lyme. There could be another explanation but they might need to look at her vocal chords to be sure. A special scope would be needed.
-

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