I feel I am herxing a bit from the antibiotics really tired and whole body sore with brain fog.
I started by confincing my primary to give me Doxy
he gave me 100 mg 2x a day
I saw the LLDO 2 days later he said it was ok to finish up the DOXY but I told him I wanted to up it to 300 so he confirmed that was ok.
he added Hyroxychloroquine 200 2x day.
so the Doxy instead of a 3 week plan from my PCP I am turning it into just a 2 week program at 3 pills a day. at which point I will switch to Minocycline (100 mg 2x day) - Imediately after running out of the Doxy.
Just wanted to throw that out there to get any thoughts on this initial program
anyway to the primary question:
I keep hearing that flagyl or cyst busters can cause nuero damage? but I do not read this in the side affects?? is the nuero damage actually caused by the bacteria die off? or is it a true side affect from the drug?
I also researched Hydrocychloroquine and it seems to be a form of cyst buster?
my LLDO told me my next treatment after the MINO will make me HERX big time so I am concerned what it's going to be? thinking flagyl. won't start the next phase for another 37 days
probiocs every night at bedtime
any thoughts
Paul
Posts: 925 | From Connecticut | Registered: Aug 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Some details for minocycline are in this thread. LIVER SUPPORT is vital for help protect ears. 3/4 of the way down page one you will see more about that. The minocycline references are sprinkled here and there.
Specifically for LYME patients - lots of details about ears and what can help:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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onbam
Unregistered
posted
google nitroimidaole neurotoxicity--it is very real.
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posted
Hydroxychloroquine is Plaquenil. It's a good drug for Lyme treatment. It's anti-malarial. It also is a mild cyst-buster. It helps macrolides (which you are not currently on) work better. I was on it for 20 months. You're supposed to get your eyes checked periodically on it.
Mino is also a good drug.
Be sure you're taking two of the doxy at one time, then the third by itself as per Dr. B's guidelines so that you get a therapeutic dose in your system once per day. According to the guidelines it's better than three times per day (always good to check the guidelines yourself to verify).
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I have been on Plaquenil almost since the begining of treatment. When my LLMD added in Flagyl last year it had no effect on me.
My guess is that could be for two reasons: 1)I am lucky and am a good detoxer, and 2) the Plaquenil has been keeping the cysts away.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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posted
Paul, not sure if it matters which dose is double, just so long as one is so that you get that higher level in the bloodsteam as if you were taking 400 mg per day.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I've had no problems with FLagyl. I think it has helped me. I only pusle 1000mg / day for 3 days every 2 weeks. My LLMD says the latest research indicates this is sufficient to get the cysts yet not risk neuro stuff.
I also take Grapefruit Seed Extract.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
bcb- I feel like i've asked you this before but I can't remember what you said. when you are pulsing the flagyl, are you still taking the other meds as well on those days?
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Yes...flagyl is added on top of the other meds. I don't stop anything.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Interesting observation. I was directed to stop the Doxy when taking the Flagyl.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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