posted
I have ulcerative colitis (I believe from the Lyme) and do well with meds. I have never had a serious flare and haven't had even a mild flare for some time, but I do now.
I didn't know where else I could get suggestions for possible natural treatments. So, I am asking here if anybody knows of any.
I have heard taking olive oil may help. Also, Archway macaroons (what a wonderful remedy), but I can't find them anywhere. So, I guess coconut oil, but how can I take that other than by itself?
I could call and talk to my gastro, I am sure he would increase my med, but I don't want to go that route.
Funny thing is it may have started with rifing. Maybe someone can help me figure that out. That is when I had my 1st loose bm. I haven't rifed regularly, so it's not why it is continuing.
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
You could have stirred up some parasite activity when you rifed. Do a search on here under parasites because it can be and most probably is one of the co-infections that needs to be dealt with.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Julie, does that have blood thinning properties, like EPA? If so, I am going to have to clear it with my LLMD.
I am already on at least 3 things that thin the blood and I have petechiae (which may be unrelated). I do have a blood clotting disorder, so maybe it doesn't matter? My LLMD did check my platelets and they were ok, and my derm said since they were she wouldn't worry about it.
I think the rife thing was a mis-memory. I think things actually started just before I started rifing, but because I had diarrhea after 3 out of 7 sessions I concluded those reactions were from rifing.
So, I still believe the flare was on it's way, but rifing did something (hopefully good). I am way over due for rifing and I think I will get to it right now.
Posts: 471 | From NJ | Registered: May 2009
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
You should check the ingredients with your LLMD - I really can't answer that question.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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I tried LDN and I quit after having insomnia for several mos. I never heard of VSL3, so just looked it up.
Why would you need to take it under a dr's supervision? (Reminds me of the commercial where a pharm. co. is selling probiotics. Makes you wonder what they did to it to get it patented).
Did you see how expensive it is! What is silicon dioxide?
Do you have any experience with it?
Sorry for all the questions, I hope you don't mind answering them.
I take a probiotic I get from my LLMD that has 16 different probiotic strains in it, but not nearly as many viable cells (20 billion). Maybe I should try taking more, it's just that it makes my gut gripey.
Posts: 471 | From NJ | Registered: May 2009
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Did you try lowering the dose of the LDN? Some people cannot tolerate it but I thought it might be worth mentioning.
Your insurance may cover an RX of VSL#3 DS (that's double strength 900billion per pouch!). I have used it and think that it is the best probiotic available. I take 2 capsules daily (225billion) before bed, one bottle lasts a month for $50. I order directly from the site, free shipping.
If your current probiotic only has 20billion per dose you would have to take 11-12 doses to get the same amount as one dose of VSL#3. So you are getting more for your money by using VSL#3.
The safety and effectiveness of VSL#3 has been backed by clinical research. That's another big reason why I like it and trust it so much.
When you start any higher dose probiotic you may have gas, bloating, and stomach discomfort for a few days until your body adjusts. Start with smaller amounts and gradually work up to the full dose.
Posts: 5237 | From here | Registered: Nov 2007
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Silicone dioxide is used in foods, supplements, and medicines to prevent caking and keep the product dry. It is supposedly found naturally in our water and soil.
Posts: 5237 | From here | Registered: Nov 2007
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
The only thing that totally eliminated my Crohn's flare was MMS (Miracle Mineral Solution).
However, it is not a natural treatment, but a chemical treatment using acidified Chlorine Dioxide to kill Acidic pathogens.
It also will kill some Lyme bacteria, which makes it rough for anyone with Lyme to tolerate.
I do not have Lyme, and I had no problems with the treatment other than the expected Diarrhea that was present until the bacteria was removed.
There also is an FDA warning advising that no one use it for any reason. However, I still use it on occasion. The last time I used it for food poisoning.
I do not promote its use or discourage anyone from using it. It worked for me, when nothing else would. Others have had problems when using it, and most of these people had Lyme.
Use your own judgment, but it will always be part of my own Crohn's treatment. My main treatment is LDN, which hopefully will limit my need for MMS.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
There are reports of GERD being cured by Manuka honey. Stranger things have happened...
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Thurs. is my LLMD appt. and I have the info for the Omega 7 and VSL printed.
Lymeinhell, do you use this sup for UC?
Sammy, I was started on a low dose. Somebody in my UC group just posted today that they are taking the VSL for their UC.
For financial reasons I'd much rather take the Omega 7 than the VSL. However, being on abx the VSL would probably be best. I am going to leave it up to my LLMD.
D, I saw the warning, scary!
Thanks again, everybody.
Posts: 471 | From NJ | Registered: May 2009
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