posted
I have been on abx for over 5 months and I feel terrible. I am still so exhausted. I thought after five months I woulde be much closer to being able to work but I feel way too much fatigue and brain fog. I've been on bicillin for the whole five months and I'm ready to quit that one. I was also on tindamax and zith to start with. Then cipro and malarone and bicillin. Now I am on Malarone/zithromax/bicillin. I was on Septra too but it was just too much. I felt too poisoned. I'm ready to just quit all abx. It doesn't seem like the answer. I am still totally exhausted and non-functional. I am also nauseous all the time. My sleep is never restful. I am treating for babesia now but I never had a positive Babesia test. If I've been treating for babesia for almost 3 months now, wouldn't I feel less fatigue? The one thing that has dissapated a lot is the intense depression and suicidal thoughts. Now I'm just tired and apathetic. I'm too tired to know what to do... The fact that my improvement is so minimal makes me wonder if I really have lyme or maybe some other combo of crazy virus or infections... Tired, tired, tireed (but not sleepy!)..
Posts: 87 | From NorCal | Registered: Feb 2008
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Please do not give up.
I have been where you are. Did you read my Detox Support thread? Do search under it and put in my name as the poster.
You may be what you described and literally toxic and the more you use abx the more toxins you ad. Some of us can not keep treating or treat successfully until we get to the place where the toxins are moving and or moved out and you know how to detox enough and fast enough so when you start killing bugs that you can get them out of your system.
Otherwise you may remain sick and sicker while you treat.. I went on this way for almost six years and I never got better no matter what treatment I used.
I also in the end had to use IV abx and go agressive when I got to where I could treat and then things changed so much.
Think about it and remember it is rare that people just get on abx and then that is it. There is usually a more complex treatment and considerations for near all of us from what I have read and heard about for this disease.
Let me know if I can help. I saw your post on Rife and I am not sure about that machine. In your condition I am sure you would herx using rife so I think there must be something wrong but I do not know what. I am sorry I can not help more with that ..
Blessings..
PS Mepron and Malarone can cause depression and very quick onset too that can be very overwhelming and please take note to the Mepron Blues Link up in the links page on the top of this page.
If you feel that you are suicidal or you are just so different than yourself even considering the illness it could be induced by the drug. This happened to me. I was able to stop the drug and in a few days the feeling lifted. Thank goodness I was told about this before I started the drug so I did not keep on taking it.
You really should know this and make sure it is not part of what your feeling.
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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I have been on abx for over 5 months and I feel terrible. I am still so exhausted.
I thought after five months I woulde be much closer to being able to work but I feel way too much fatigue and brain fog.
I've been on bicillin for the whole five months and I'm ready to quit that one. I was also on tindamax and zith to start with.
Then cipro and malarone and bicillin. Now I am on Malarone/zithromax/bicillin. I was on Septra too but it was just too much.
I felt too poisoned. I'm ready to just quit all abx. It doesn't seem like the answer. I am still totally exhausted and non-functional.
I am also nauseous all the time. My sleep is never restful. I am treating for babesia now but I never had a positive Babesia test.
If I've been treating for babesia for almost 3 months now, wouldn't I feel less fatigue? The one thing that has dissapated a lot is the intense depression and suicidal thoughts.
Now I'm just tired and apathetic. I'm too tired to know what to do... The fact that my improvement is so minimal makes me wonder if
I really have lyme or maybe some other combo of crazy virus or infections... Tired, tired, tireed (but not sleepy!)..
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
Five months is only the beginning, depending upon how long you've had this. If you've had it for years, then it may take 2+ years to knock it out.
Treating babesia is essential. You are probably herxing on the Lyme AND babesia meds. Double-Whammy.
It does sound like you need to do something to detox so things won't be so hard for you.
Maybe Spring will bring up the thread on detoxing so you can find it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I agree. It is a long road but you can't get there if you stop walking...
It will get much much better after you get the loads down.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I really feel for you, not getting much better, but you do say you are not feeling suicidal any more. I would sure hate to go back to feeling like that, so you might want to try detoxing a lot and see if you can hang in there.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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quote: You may be what you described and literally toxic and the more you use abx the more toxins you ad. Some of us can not keep treating or treat successfully until we get to the place where the toxins are moving and or moved out and you know how to detox enough and fast enough so when you start killing bugs that you can get them out of your system.
Posts: 797 | From New York | Registered: Feb 2008
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no one has the answer for how long it should take to feel better on ABx. I was on them for about 6 months before I stopped because, like you, I only felt worse. I wasn't certain at the time if it was because lyme wasn't the answer but I successfully treated lyme and co-infections with biophotons a few months later. When I didn't recover despite resolving lyme and company, I was convinced I had way more going on. Keep in mind I was IGM CDC positive for lyme.
Fast forward two years and I tested positive for a retrovirus. In the meantime, my natural killer cells (the CFS equivalent of CD57) continued to drop, my neutrophils stayed low, and my rnase-l dysfunction (telltale sign of viral issues) didn't budge.
If I were you, I would test for HGRV with www.vipdx.com. The serology test is pricey ($250) and will probably come down, but in the grand scheme of things if you're positive, it may change the complexion of your treatment entirely.
Many on this forum have felt better with antibiotics despite feeling worse in the beginning; many just plain felt worse and then realized they either weren't taking the right drugs, couldn't tolerate the drugs and needed to try alternative treatments, or realized they had more going on than lyme and co. We can only give you our personal experiences but ultimately only you can decide if this is a sign of progress.
Posts: 713 | From Los Angeles | Registered: Oct 2007
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
jalama~ Have you been tested for HHV-6, EBV, enteroviruses? They may be causing part or all of your illness....
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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I am so sorry you are feeling like this... I too have wanted to give up.
For me, like Bea said, Detox is KEY. I think it is Key it is just not always discussed by our docs.
I really didn't learn about it until I came to this board and some caring souls said-- what are you REALLY doing to detox. I said drinking water... (smiles) Not enough for what we are putting in our bodies-- at least for me.
I turned a corner with detox and I am handling Bicillin, Mep/Zith, Plaquenil and Septra - initially I thought there is no way. However, with detoxing everyday... Please do read that thread and what helped me the most are coffee enemas... Like my new PA said... you were desperate weren't you. I said YES!
I don't know if you have read of the Gerson method but CEs are used for cancer treatment among other things but a vital part of that program.
Try to remember that most people are not even close to being done in 5 months. I will be honest in telling you that I wish I had not pulsed for two years and went right in to a Burrascano type treatment. I think you also have to pay attention to your body and when you are adding meds, do so slowly so that you can see if something doesn't work for you. I agree with TF that we do not have to be miserable through treatment.
Now when I started these new meds, I had a rough few days however, I added very slowly am detoxing daily, and I have not felt this good in two years - since I was bitten. I do herx and have herxed but in comparison to my clear head and energy... whatever it takes.
I agree with the others that you need a good go over in terms of testing for viruses etc. Have you done that?
Most importantly, you are not alone.
You will get to the end of all of this I believe with everything in me if you work towards that, don't give up and reach out to your doc when necessary. When do you meet with your doc again?
Thinking of you...
Posts: 243 | From Charleston, SC | Registered: Oct 2008
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