posted
My friend's LLMD has suggested to her she start to use an oxygen concentrator. I wanted to find out others thoughts or experiences with this. Was it helpful? WHich type and how often?
karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
I tried, but the oxygen was too strong for my lungs.Probably caused die-off, so I could not use it for more than very few minutes. Also it was $ 200 a month and not covered by insurance. But she can buy a concentrator.
Posts: 1834 | From US | Registered: Oct 2008
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posted
Just wondering why her llmd suggested the concentrator. Mine did because he thought I had carbon monoxide symptoms(multi-sensory sensitivities)I had cardiac and breathing side effects from the concentrator.
Someone I contacted in Maryland thought it was a reaction from something in the concentrator and wants me to try a tank. My llmd thinks it was from the free radicals. Also could have been lyme or babesia reacting to the oxygen. My llmd was surprised I had any side effects from it.
Wish I could have tried it before I rented it, cost me $325 for a month and they refused to give me a refund.
I am highly reactive to everything these days, so don't let my experience discourage her. Just would be nice if she could try it somewhere first before having to pay to make sure she can tolerate it.
hope it works out for her, diana
Posts: 857 | From northern california | Registered: Dec 2009
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posted
I am on one at 1 liter a night and it has helped with sleeping better and helping with the dipping of oxygen at night. No side affects. Am getting another sleep test done to see if it has gone into sleep apnea.
Posts: 871 | From orange county, ca. | Registered: Jan 2006
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I think the reason is because lyme is "anarerobic" and prefers a condition with less oxygen. Maybe by supplementing with O2, you make the conditions worse for Bb and aids in killing them? DOnt know really
Posts: 747 | From Utah | Registered: Apr 2010
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