posted
I wanted to start by saying that I have neurological problems and am I. Treatment for Lyme. I have neuropathhu and have noticed that my tongue has been tingling. It does not have white spots and I don't have a sore throat. I have had thrush before and it does not feel like ghat . It is driving me crazy though. What is it from? Is from neurotoxins?
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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posted
Just a couple of ideas or possibilities, that might be worth ruling in or out:
1. B12 deficiencies cause a tingling tongue. It seems even when Lyme patients have normal serum levels of B12, they are still often deficient. I'm not sure that the serum testing is that accurate anyway. You could look into the shortcomings of serum testing for B12.
A lot of LLMD's automatically include or prescribe B12 supplementation (oral or injectable) for their Lyme patients. Doc B also recommends it in his Guidelines.
2. Also might want to look into Hypoparathyroidism. This would be different and apart from any other Thyroid testing or problems. It's often overlooked in endocrine testing -- even with the really progressive doctors/LLMD's.
Hypoparathyroid problems also cause neurological symptoms.
And some of the medications that are used to treat Lyme and Co's (i.e., Rifampin), suppress or interfere with PTH (parathyroid) production, I think.
Posts: 503 | From Maryland | Registered: Oct 2007
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posted
Thank you . I am on b12 injections and medication for my thyroid. I am going to ask to be retested to see if my thyroid medication is accurate. I did take a dose of my neurotin and it helped.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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I have had tongue symptoms since the onset of my neuro-lyme symptoms (and the myriad of co-infections). Numb tongue, tingle, tremor, feels too big - you name it, I've probably had it with the tongue (numbness in face as well).
Anyway...after 2.5 years treating (currently on IM Bicillin + other stuff). I can say it is better, not completely back to normal, but not as weird.
Oh yes, I am hypothyroid as well (thanks to Lyme, I'm sure) and do take thyroid meds.
Sorry, not much help as to why, what to do etc. Just my experience and to let you know, you're not alone! TS
Posts: 566 | From West Coast | Registered: May 2008
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posted
i guess i'm not alone! I have the same exact things....numb, feels too big, tingles, etc. I have numbness and tingling all over my body. Most has gotten better with treatment.....the tongue hasn't. by the way....ticks do suck!!!!! do you take neurotin as well?
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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posted
I've tried neurontin in the past, without much results. Yes, I have numbness in my feet, various places. But the tongue thing is very annoying. Mine is better, far from gone, however. I just keep pluggin' away and hope for more improvement. TS
Posts: 566 | From West Coast | Registered: May 2008
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posted
I've had the weird tongue issues too.
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I have had about 10 episodes where my tongue is tingling and burning, along with my lips, both arms and upper chest. My legs and feet were also affected in the earlier episodes.
My LLMD thought it might be some die off, but who knows.
Sometimes it would happen once weekly about 10 pm, then sometimes less often, every 2-3 weeks.
I just had a milder episode this week...the first one in a month....always at night.
It usually lasts about 5 minutes then it's gone.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
Iron deficiency ( ferritin ) is another possible cause.
If your doctor only tests hemoglobin and hematocrit and tells you that your iron is fine, you should INSIST that he/she test your ferritin. It is possible to not be anemic, but still very iron deficient.
Posts: 1142 | From South | Registered: Dec 2010
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posted
Hi, my ferritin was low and I'm receiving iron infusions.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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