LymeNet Flash: Did I change too many things at once?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Did I change too many things at once?

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Topic: Did I change too many things at once?

bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

posted

So, today is the worst I have felt since my first month of treatment. I'm still functional, but feel like I have the flu or something. Fatigue, nausea, chills, etc.

I am hopin that it is just a Bart herx due to Rifampin, but worry I am relapsing as I changed a lot of meds around the same time. Specifically:

Sept 16: Stopped Biaxin / Amantadine, re-started Doxy
Sept 17: Started Levaquin for Bart. Had periods of stomach issues / nausea over the next week. Not related to Doxy.
Sept 23: stopped 20 mg Prozac
Oct 1: Stopped Levaquin due to tendon discomfort. I also hated this drug. I suspect it kicked up the bart. I felt very "off" while on it.
Oct 3: no Bart Drugs. Flu like symptoms.
Oct 4: start Rifampin. Increase in word loss for a day. Increase in GI symptoms and moments of ear symptom flares.

So now I feel like crap. Hoping it is a Bart herx, but not sure as I've changed so much.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 95% +/- most days.

Posts: 3134 | From Massachusetts | Registered: May 2010 | IP: Logged |

mojo
Frequent Contributor (1K+ posts)
Member # 9309

posted

Did you stop your Prozac cold turkey? That alone can really mess you up.

Some of us really herx hard on the Rifampin. But it can also hike your Liver Enzymes and make you really sick that way. I thought I was herxing (I think I was) but also my liver enzymes were through the roof. I had a bad headache, bad stomach and was itchy. I felt very very ill.

You should definately check those liver enzymes if you haven't yet (some Docs do it every two weeks).

Posts: 1761 | From USA | Registered: May 2006 | IP: Logged |

bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

posted

Thanks..yes did stop Prozac cold turkey, but met with my psycho-pharmacologist today who said Prozac (particularly a low dose like 20mg that I was on) can be stopped cold as it has a 36h half life. All others you MUST taper.

Seeing my LLMD today and will get bloodwork.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 95% +/- most days.

Posts: 3134 | From Massachusetts | Registered: May 2010 | IP: Logged |

TN Kim
LymeNet Contributor
Member # 26729

posted

You and I seem to be going through very similar things at the same time!

I was just on here searching for "Chills". I am on my 2nd pulse of Rifampin and along with my typical herx body aches and pains, I also keep

getting chills and also feeling like I NEED to have a chill but can't actually get one! Does that make sense to anyone?

It's a very strange and uncomfortable sensation. Sort of like when you need to yawn or sneeze but it won't come. I think this is

more annoying thought than either of those but they are the best things I can relate this feeling to!

Thanks!

--------------------
Bite 4/22/12
abx 5/03/12
neg. Lyme
pos. Cpn 5/17/12

Bite 5/22/10
abx 6/25/10

IgM � Igenex Positive & CDC/NYS Positive with 18+ ; 23-25+; 31+; 34+; 41+; 66+; 83-93 (IND)

IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+

Posts: 339 | From Tennessee | Registered: Jun 2010 | IP: Logged |

sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

posted

I know sometimes it is tempting, but never change more than 1 thing at a time. That way you will know what is actually causing the problem.

Posts: 4035 | From Mississippi | Registered: Jul 2008 | IP: Logged |

Haley
Frequent Contributor (1K+ posts)
Member # 22008

posted

I'm sure all the changes can be contributing to your symptoms but also Rifampin is strong stuff. It can throw you for a loop.

How much are you on? I'm trying to start at a low dose and it is already kicking my butt.

Posts: 2232 | From USA | Registered: Aug 2009 | IP: Logged |

kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691

posted

I have ALWAYS had trouble stopping ANY drug like Prozac cold turkey.

--------------------
symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections.

Posts: 1470 | From Tennessee | Registered: Dec 2009 | IP: Logged |

bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

posted

600mg. Better today. Stopped Doxy and went back on Biaxin / Amantadine.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 95% +/- most days.

Posts: 3134 | From Massachusetts | Registered: May 2010 | IP: Logged |

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