posted
I have a 15 year old son who's had various symptoms for 7 months, starting in May.
He's recently gone through a growth spurt from 6'2" to 6'5" in the last year.
Symptoms:
1) When he stands up and walks around the house, he develops large red blotches on his feet and legs.
They look like sunburns. They are not raised, or blistered. He describes the pain as feeling like hot burning needles being poked into him.
The redness and pain goes away after he sits down.
2) His face can become bright red and flushed with the same pain even while just sitting watching TV.
These flushes can come and go without an hour.
3) He's had some tingling in his hands recently.
4) Now, he tells me his vision is being affected. He describes it as "grainy vision", with dark dots swirling all around.
These symptoms are increasing and spreading.
We've been to three dermatologists. First they thought it was hives, but antihistamines didn't help.
One thought it might be related to erythromelalgia, while another disagreed, thinking it might be something related to vasomotor instability, due to his recent huge growth spurt.
Everyone's doing tests right now, but no results yet. (thyroid, vitamin deficiencies, etc.)
We went to an Integrated Medicine MD, who is testing for nutritional deficiencies.
The grainy vision has me very worried.
Since we live in a country setting, I'm wondering about Lyme.
He has not had any symptom related to a bulls-eye rash.
I'm thinking I need to have him tested for Lyme to either confirm or rule it out.
Where do I go?
If nothing is available near Corvallis, I'm fine with going to Washington, California, or frankly, anywhere to meet with an expert.
Ideas?
Posts: 3 | From Corvallis, OR | Registered: Dec 2009
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massman
Unregistered
posted
Should be some naturopathic docs in your area as there is a school in Portland. There are some sites that list NDs by town or zip.
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Hi Mrs RP and welcome to our lyme site. We're so glad that you came to us.
I have sent you a private message. Hoping you'll find the information helpful.
Please visit and join in on our great "Medical Questions" forum. Feel free to post all the things you'd like to know about--the members are happy and eager to share their experiences and knowledge with you. You will find some answers there!
You and your son are in our thoughts and prayers.
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Don't go to just any naturopathic doctor as most know very little about lyme and assume if you can just get stronger you can beat anything on your own.
That is so not the case with lyme.
I wasted years after no MD would treat my positive tests for 3 tick-borne infections even with severe symptoms. I wasted more years on several otherwise good NDs who knew something was very wrong but severely underestimated the destruction and nature of lyme. But then, I had no other option.
However, now we have a couple excellent LL ND (naturopathic doctors) in the Portland area and one in Salem, closer to you.
I'll PM you names and contact for the Oregon Lyme Disease Support Group. Sadly, their website is down temporary as it has to be supported by lyme patients themselves who are often strapped for funds.
Sadly, there is not one single LLMD in Oregon as the Oregon Medical Board will not allow any doctor to treat lyme patients for more than about a week or two tops and none of them is familiar with the full range of other tick-borne infections.
Most MDs say lyme just does not exist in Oregon and, if the rare case of someone with a bulls eye rash, they will get nine days' of a single antibiotic and then dismissed.
Recently, even some patients who saw the attached tick, even had the bulls eye rash for the doctor to see have been denied any treatment at all, again, told "there is no lyme in Oregon."
The local stronghold for the IDSA (a group ignorant about lyme) in Oregon is very vocal and very violently opposed to the idea of lyme or any tick infections. He controls all the other doctors in the state. Some doctors have lost their licenses for treating
Fortunately, the NDs are not held by the same licensing board.
The LL NDs who I will send are also members of ILADS so they are well-educated in this field and they treat many lyme patients, some of whom also go out of state to see LLMDs.
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