posted
I've learned, from my MD, of the potential to cure chronic lyme via hyperthermia; but the hospital team in Italy he referred to is no longer providing this treatment? So I'm interested in any doctor leads, research, and success stories you might have. Many thanks, Sam
Posts: 2 | Registered: Jun 2004
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
It's called ICHT. Do a search under "Italy" in the medical forum, you'll find lots of posts. It doesn't come up under ICHT.
As far as I remember, there were a few who did well, but more who relapsed afterwards. The doctor in Italy is dealing with legal problems.
They offer hyperthermia. I went for a consultation, and the way they do it is raise your body temperature to a fever, but they also give you doxy and through an I.V. give you 7,500mg of vitamin C. The theory is that the heat causes the spirochetes to come out of hiding, and the medication along side the huge boost to the immune system via C enables the body to attack.
They suggest 10 treatments and claim to have sucessfully treatment many who had chornic lyme.
While you are in hyperthermia, there is a blood pressure cuff on you, a heart monitor, thermameter, ....I think that is it, along with an I.V. running.
I don't know what else to try. The doctor is very lyme literate and knows about the big infectious disease doc in Zurich that doesn't believe in chronic lyme, and some of those people eventually find there way to hyperthermia he says.
Anyway, tomorrow I have my first try.
Mary
Posts: 1032 | From North Carolina | Registered: Aug 2003
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- singingphoenix,
Is that MD, "lyme literate" ILADS "educated and has he or she been working with advanced lyme for many years? That really matters so they have a full understanding of the complexities but also in how lyme can affect a body.
Most often, those with lyme, react terribly to heat. So, there are certain things to consider - and if you go ahead - certain precautions to put in place.
A reply posted at another thread where the above poster - uh - posted.
Some things to consider as you do your research.
sorry I don't have energy to edit this directly for you but hope there are some things here to help as you find your way forward.
-----------------
There is no degree of heat that will kill spirochetes that is safe for a human.
I've read from several top LL authors that heat causes spirochetes to go into their protective cyst form.
Doxycycline also causes spirochetes to go into cyst form. I see nothing they are to give you that will address the cyst form at all.
Spirochetes HATE heat and will do all they can to burrow deeper and create their protective cocoons within us, even going deep into our bones.
Same with vibration.
Heat can be very dangerous for those with lyme.
I know you want this to work, and I hope (if you decide to do it) that it does.
For myself, I would never go this route. Now, this doctor may do things differently but in the past, with other doctors, there have been a few fatalities with hyperthermia treatments.
I researched Intracellular Hyperthermia Therapy (ICHT) as a possible option years ago. I spoke with some who went through it and some felt better but only for a while.
I considered going to Italy (before an Atlanta clinic was opened, then closed. Then they went to Mexico and a fatality forced closer of that clinic). I hear it's also being done now by a doctor in Germany.
Other major considerations:
1. MYELIN SHEATH
Also to consider is that, for many with lyme who have the characteristic myelin sheath damage to the nerve fibers, heat can be very dangerous and cause neurological damage that could be permanent.
This is where it's best to follow those diagnosed with "MS" (although we know "MS" can often be lyme or other chronic stealth infection) . . . with MS, the myelin damage dictates avoidance of heat.
2. LIVER
For those with lyme, the liver is often toxic and so overworked. HEAT HURTS THE LIVER, in such cases as it's forced to work beyond it's capacity. Liver damage can result but that also further stresses all body systems and organ.
3. The HEART often cannot handle heat and lyme.
4. Ditto for the ADRENALS.
Now, you may be one of the few with lyme who can handle high heat and do okay. If you are not, however, be very clear about the damage that can come from high heat so that you can cover all the bases as you further research is this would be a good fit for you or not.
I feel really badly pouring a bucket of water you your excitement about this, especially since you are to go tomorrow for your first treatment.
I guess, you've studied this in depth for some time and talked with many who have done it - and talked with everyone a year later, too.
So, I can only hope that there is something about this doctor or this clinic that might make this different from those who've done it in the past.
I also hope they have liver, heart and adrenal support for you. Not sure how they can help protect from myelin sheath heat stress, though, that's also important to have in place.
Take care. Best of luck to you. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Mary/Lymewreck, re you saying you don't know what else to try - people are having good results with other kinds of treatments, like stem cell injections, light energy machines (biophoton, PE-1), PEMF machines, and more.
Keebler, I will tolerate the heat of an FIR sauna - I'm in a limited amount of time till I sweat, and then that's it.
Posts: 13116 | From San Francisco | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- singingphoenix,
Robin is good to make that note about tolerating only a low heat type of sauna.
A FIR sauna can help with circulation and detox - but not so much from heat affecting spirochetes directly as that would be too hot -- while warm and hot (to a degree), it's much lower heat than typical saunas.
FIR sauna - A "Far infrared sauna" is a LOW(er) heat, not to be confused with a regular sauna that reach much higher temps.
The method of heating is different, too. At lower heat, the infrared actually penetrated deeper, and more gently. For anyone new to the term, FIR, details here:
quote:Originally posted by lymewreck36: Just looking through some posts on hyperthermia. I live in Switzerland, and I have my first appointment at the following place tomorrow: http://www.placidway.com/profile/691/Lake-Garden-Medical-Center They offer hyperthermia.
Hi Mary,
I'm wondering: How was the treatment for you? I hope it helped.
Posts: 269 | From Germany | Registered: Jul 2009
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