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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » SW Virginia doctor needed

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Author Topic: SW Virginia doctor needed
Pe2005
Junior Member
Member # 45723

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Treated for Lyme & Erlichiosis 2 years ago by family doctor. However, not confirmed with blood test. Had an allergic reaction to doxy after a week, then given 10 days of amoxicillin. Thought I had recovered, but began loosing weight unexplainably about 8 months ago. Over last 6 months began developing severe chest pains/indigestion. Subsequently hives. Within last month extreme fatigue, leg aches, joint pain and wake up with headaches, anxiety. After loosing consciousness in front of my 3 little boys, my husband rushed me to ER where I was treated for anaphylaxis. Allergist confirmed Alpha Gal beef allergy. This happened again 3 days ago...this time, ER discovered low potassium and EKG showing heart changes/block. being told just to go back to primary doc and get something for stress/anti depressants and ask primary for a heart monitor. I've been in and out of doctors offices for 8 months and everything comes back normal, just anemic. Could this be Lyme too? Really need a good doctor who can put this all together....worried I'm not going to live through this.
Posts: 1 | From Roanoke | Registered: May 2015  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Member # 743

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I sent you some info on DRs in VA .. Babesia, a coinfection of Lyme can cause anemia. Be sure to be properly evaluated by an LLMD.

If you want specific answers to your questions, you will find more help in the Medical Questions forum here on LN.

Welcome! [Smile]

PS .. Heart block could be from Lyme .. many of your symptoms sound like babesia.. Alpha Gal allergy is caused by Lyme disease...so find an LLMD right away!

Info on Lyme and Coinfections:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/88555

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for VA & MD.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

They are far and few between, unfortunately. You need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/15615?#000005

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner to see a LLMD by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/VirginiaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/virginia.html

http://www.lymenet.org/SupportGroups/UnitedStates/Virginia/

The top LLMD, Dr. H, has written a new book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.

Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Here is a page with a number of suggestions on how to find a Lyme treating doctor in Virginia, and a list of treating doctors.

https://sites.google.com/site/virginialyme/doctor-referrals

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
   

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