posted
Perhaps you could contact www.ilads.org and ask them - they participate in European Lyme conferences.
Posts: 13116 | From San Francisco | Registered: May 2006
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Not true. Germany has doctors who treat Lyme. Some call themselves LLMDs. Most are clueless and know MUCH less about Lyme disease than US ILADS doctors.
Most totally ignore co-infections. I diagnosed myself with Babesia (which later was confirmed via an IGeneX blood test).
I think this needs to be said, since a lot of people on here seem to think that Germany is the land of milk and honey as far as LLMDs are concerned.
And that is NOT the case. I speak from experience. And not just my own ....
PS: Sorry, hopeandpraying, I know you were just quoting what you read on here :-). I just felt I needed to speak out ...
[ 01-01-2016, 09:40 AM: Message edited by: Nula ]
-------------------- I appreciate all your replies. If it takes me a while to respond, it is either because I'm too sick or because I am unable to log in. From European servers, Lymenet is very frequently inaccessible for days at a time ... Posts: 235 | From Europe | Registered: Jul 2012
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posted
Thank you, Nula, for the clarification. No offense taken. It's good that you brought this to our attention, because most don't know the real situation in Germany.
Posts: 8981 | From Illinois | Registered: May 2006
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posted
You're welcome, hopeandpraying. Happy New Year!
My German LLMD experience:
- LLMD # 1 diagnosed me with Lyme disease and literally saved my life (I had massive heart issues) with Minocycline and Plaquenil. Beyond that, he was clueless about co-infections.
When I told him (after six months) that I had read up on the topic and thought I had Bartonella, he told me to talk to my gynecologist!
-- LLMD # 2 thought he was the Holy Grail; told me, "You're so lucky to have found me!" Then he ran tons of tests, never followed up on them (treatment-wise); told me that my weak positive Bartonella antibody test was "probably nothing" (despite my Bartonella symptoms); and decided that Mino and Plaquenil should have "mopped up the Babesia"
-- LLMD #3 (only one visit, I'd gotten smarter by that time!) told me that I didn't need to take any anti-fungals because, "They wouldn't work anyway while you're on antibiotics."
-- LLMD #4 (only one visit!) told me with an awestruck face, "You know more than I do!" (Gee, thanks. I think I won't be paying *you* then ...)
-- LLMD # 5 told me my boat-rocking/ataxia (so clearly a neurological problem) was an "orthopedic issue"; then he picked up the phone and called LLMD #6 because he just wasn't sure about the antibiotics combo he was going to give me ...
--LLMD # 6, supposedly ILADS-educated and one of the best in the country, insisted that I didn't have babesia. Air hunger, 24/7 boat-rocking sensation, night sweats, chills ... No Babesia? Ya think?
He bombarded me with antibiotics, probiotics that did nothing and barely any detox supps; I ended up feeling too toxic to continue with him ...
That's my story. And I'm stickin' to it
-------------------- I appreciate all your replies. If it takes me a while to respond, it is either because I'm too sick or because I am unable to log in. From European servers, Lymenet is very frequently inaccessible for days at a time ... Posts: 235 | From Europe | Registered: Jul 2012
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