LymeNet Flash: BOSTON MASS--LLMD

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » BOSTON MASS--LLMD

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Author

Topic: BOSTON MASS--LLMD

shell
Junior Member
Member # 47465

posted

My friend is currently out of money and critically ill, we fear how long she will be able to hold on. She has been to several hospitals in the area and they just give short term meds for all the co-infections and run x-rays and such and discharge her. The last hospital sent a social worker in to tell her Lyme disease is not real. Please help us find her a doctor that can help

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shell

Posts: 1 | From Boston | Registered: Feb 2016 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Info sent. God bless you both!

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--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet!

God bless you for being such a wonderful friend and trying to help her. She needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. Your friend needs to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in to sooner by doing this.

Check the online state Lyme groups at:

https://groups.yahoo.com/neo/groups/MassachusettsLyme/info

Maybe they can help.

Some more resources (including Support Groups info):

www.lyme-aware.org/massachusetts.html

http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/

Here is a link found on Lymenet for "Financial Help and Other Information":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=023463;p=0

The Lyme Disease United Coalition, (800) 311-7518, has good information for financial resources on their website:

http://www.lduc.org/lyme-disease-resources

Scroll down for financial help, etc., available from several sources.

Also call them to ask if they can recommend anyone for your friend.

The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need. I think coverage is up to 75%.
View on www.lymetap.com

"Help For You" link here...

https://sites.google.com/site/marylandlyme/help-for-you

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Check the local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

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