I'm looking to go this possible route as i have no
income to afford the very expensive igenex testing
kit and I already had a standard Western blot that
came back negative but I have a lot of
neurological symptoms that still match criteria
for a possible lyme case and just about resemble a
scary dementia onset in the early stages from
severe brain fog, visual snow (seeing flashes of
light, sensitivity to bright light), memory lapses
and trouble recalling events that happened, heart
palpitations at night which trigger when I lay
down and will bring on insomnia as I'll have low
heart rhythm which doesn't get better until
morning, crawling sensation of bugs roaming
underneath my scalp and limbs(happens mostly at
night), derealization (being stuck in a dream
state where your emotionally flat and your thought
process is absent 24/7, sudden crying spells, mood
swings and episodes of bipolar disorder with
racing thoughts so basically I'm 35 right now and
noticed the onset of these symptoms emerge when my
brain began leaking in November 2017 and everyday
my cognitive functioning is deteorating at a fast
pace where there's a new surprise to this mystery
just about daily and just about my neurologist and
primary nurse practitioner ive seen are baffled
about my case and still convinced I suffer from
extreme paranoid anxiety and that my immune system
is normal regardless of how mentally sick I feel
inside and I do take a antidepressant of depakote
but I believe it's adding more insult to injury on
top of the already chronic fatigue I have so it
doesn't help much except make you a zombie not too
mention the mushy head sensation which makes you
totally paralyzed like you lack feeling and your
brain is empty so if anybody knows of any lyme
doctor within this area and could provide any
input if this appears like a common lyme
possibility then I would gladly appreciate any
advice you guys may help me with
thanks, kevin1983
Posts: 81 | From ohio | Registered: Jun 2018
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I'm sending you a private message with two possible LLMD in southern Ohio that might take your insurance.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Any luck Kevin finding a LLMD? Of course this time of year during the 4th is tough because many docs offices are closed for vacations.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
can anybody else help me with finding a specialist near the Dayton area that accepts caresource medicaid because all llmds in South Dayton are outta pocket expense or their booked with patients so does anybody have any other ideas where a doctor could test me with igenex, thank you!
Posts: 81 | From ohio | Registered: Jun 2018
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
You can request a LLMD through Global Lyme Alliance here ;
There is a message box where you can write your need of a LLMD that accepts your insurance. But I have to warn you, it's like trying to find a needle in a haystack. Also ask if financial resources could be provided to you.
Posts: 2977 | From Florida | Registered: Nov 2016
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
kevin, LLMD and insurance rarely go together. It just doesn't make sense for a Lyme doc to have an insurance co telling them how to treat.
Now you can order the Igenex test kit and have it sent to you. Your PCP can have the Igenex labs drawn.
Medicare pays for Igenex labs, but I'm not sure about your Care insurance. Is it Medicaid?
Igenex testing must be drawn exactly like instructions that Igenex sends with test.
Spending money on Igenex is questionable when you have all the classic symptoms of Lyme & co-infections. In other words, don't use your out of pocket money for testing. This is a clinical diagnoses.
Use your money for treatment.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Kevin, for my information, did the Dr Dorothy S in Cincy area that I gave you.....not take insurance anymore?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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quote:Originally posted by map1131: kevin, LLMD and insurance rarely go together. It just doesn't make sense for a Lyme doc to have an insurance co telling them how to treat.
Now you can order the Igenex test kit and have it sent to you. Your PCP can have the Igenex labs drawn.
Medicare pays for Igenex labs, but I'm not sure about your Care insurance. Is it Medicaid?
Igenex testing must be drawn exactly like instructions that Igenex sends with test.
Spending money on Igenex is questionable when you have all the classic symptoms of Lyme & co-infections. In other words, don't use your out of pocket money for testing. This is a clinical diagnoses.
Use your money for treatment.
Pam
igenex does not cover medicaid and I don't have any income because I'm poor and unemployed due to my cognitive situation ongoing but I get it the CDC or anything the government does not care about rare disease studies like lyme and use those diseases to weed out the population quicker just for their control agenda so it makes total sense they want us to suffer but back on topic, should I try gofundme instead?
Posts: 81 | From ohio | Registered: Jun 2018
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. Put an add in the paper asking for help, call your local TV stations to get your mission heard, put up fliers anywhere and everywhere, contact church organizations, catholic charities, call friends and family and beg for their help, google financial aid for medical conditions. Hope you find help.
Posts: 2977 | From Florida | Registered: Nov 2016
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
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