LymeNet Flash: Seeking OH or MA Doc, prefer CCF or Partners

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking OH or MA Doc, prefer CCF or Partners

UBBFriend: Email this page to someone!

Author

Topic: Seeking OH or MA Doc, prefer CCF or Partners

TechieTechie
Junior Member
Member # 52402

posted

Hi,

Recently diagnosed with Lyme, which is NOT common in Ohio. Not thrilled with my current infectious disease doc.

Recent transplant from the East Coast, so looking for experienced recommendation for Lyme docs in Northeast Ohio or Boston area. I have already perused previously posted links so no need to resend.

Specific doc recommendations are preferred. Previous Partners patient so if I can stay w/in Partners or Cleveland Clinic system(s), that would be preferable.

Thanks

[ 07-21-2021, 06:45 AM: Message edited by: TechieTechie ]

Posts: 2 | From Cleveland/Boston | Registered: Jul 2021 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for OH (don't know if the LLMD takes insurance - you would have to contact the doctor's office to find out).

Most Lyme-literate doctors (LLMDs) do not take insurance, due to the hostile politics surrounding this insidious disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

posted

Welcome TechieTechie

If you aren’t happy with your current ID doctor, you will not be happy with Cleveland Clinic.

Cleveland Clinic ID docs follow the IDSA guidelines ( Infectious Disease Society). They will treat you for 14 to 28 days with antibiotics and declared you ‘cured’.

Many Lyme researchers and ILADS (International Lyme and Associated Diseases Society) say to treat until all symptoms are gone.

The Lyme Wars
https://www.clinicaladvisor.com/home/features/controversy-continues-to-fuel-the-lyme-war/

You can request a LLMD ( Lyme LItterate Medical Doctors trained according to ILADS standards) through ILADS website here;
https://www.ilads.org/patient-care/provider-search/

You can request a LLMD through Global Lyme Alliance here;
https://www.globallymealliance.org/lyme-patient-support/find-medical-professional/

You can also contact your area’s Lyme Support group.
Support groups offer first-hand experiences with your area’s LLMD’s.
https://m.facebook.com/CJMOSCHELL/

I will send you pm for NE Ohio and Massachusetts.
Good luck to you on your healing journey.

Posts: 2977 | From Florida | Registered: Nov 2016 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/