LymeNet Flash: Looking for a lyme doctor in Northwest CT

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Looking for a lyme doctor in Northwest CT

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Topic: Looking for a lyme doctor in Northwest CT

Kerid
Junior Member
Member # 52596

posted

I am looking for a lyme literate doctor in Northwest Connecticut that treats children. My niece was diagnosed about 6 months ago and was given the typical 30 days of antibiotics. She is now coming down with additional symptoms and needs a doctor who is experienced with treating lyme. Thank you!!!

Posts: 1 | From Ct | Registered: Jun 2022 | IP: Logged |

Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

posted

Welcome to LymeNet Kerid

So sorry about your niece. Of coarse we can help.

You can request LLMD’s through Global Lyme Alliance here;
https://www.globallymealliance.org/lyme-patient-support/find-medical-professional/

You can request LLMD’s through ILADS (International Lyme and Associated Diseases Society) here;
https://www.ilads.org/patient-care/provider-search/

These are simple e-mail formats that you fill out and they respond with LLMD’s in your area. Be sure to state you are looking for a Pediatric LLMD in the message box.

How To Prepare For Your LLMD visit;
https://www.tiredoflyme.com/how-to-prepare-for-your-first-llmd-or-llnd-appointment.html

Most LLMD’s don’t participate in insurances and your 1st visit will be the most expensive and the longest in duration. Because you are a Connecticut resident, there are LOTS of financial resources available. Go Connecticut!

LymeLight Foundation
https://www.lymedisease.org/lymelight-foundation-children/

Elizabeth White Foundation
https://www.lymedisease.org/touchedbylyme-financial-ct/

Partner In Lyme
https://www.partnerinlyme.org/

It is recommended that you research all LLMD’s that are referred to you. To do this, join your local area’s Lyme support groups.
Support groups have first-knowledge of treatment protocols and successes that your nearest LLMD’s offer.

Here’s your Lyme Support groups;

Western Connecticut Lyme
https://rawlsmd.com/lyme-support/united-states/connecticut/western-ct-lyme-disease-support-group

https://www.globallymealliance.org/lyme-patient-support/support-groups/

LymeNet provides the most comprehensive journeys of Lyme patients experiences. Please utilize the ‘search’ function located in the middle of home page. If you should need help with any questions, you can post in open forum and a member will respond.

I will send you a private message for Connecticut LLMD’s.
Good luck.

Posts: 2977 | From Florida | Registered: Nov 2016 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for CT.

Your niece needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. She needs to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Links with a great deal of good information about Lyme and children:

https://sites.google.com/site/drjoneskids/symptoms-literature

https://sites.google.com/site/drjoneskids/home

http://www.childrenslymenetwork.org/

http://whatislyme.com/children-and-lyme-disease-collection-of-links-and-articles/

Here is a link for a book titled, "When Your Child Has Lyme Disease: A Parent's Survival Guide" which also might be helpful:

http://www.lymeliteratepress.com/

Contact the CT Lyme Support Groups - they would know better about CT.

https://whatislyme.com/lyme-in-connecticut/

https://www.lymenet.org/SupportGroups/UnitedStates/Connecticut/

Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used online.

View "Under Our Skin"
https://m.youtube.com/watch?v=2JgR_Jfbhv8&noapp=1&client=mv-google

and "Under Our Skin2: Emergence"
https://drive.google.com/open?id=1iAzRksyHfSNWBGsHcugYl9a8WQ9TnDCW

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

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