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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » East Coast - Bartonella EXPERT LLMD needed - looking for feedback

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Author Topic: East Coast - Bartonella EXPERT LLMD needed - looking for feedback
HmsVictory
Junior Member
Member # 52620

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Hello All,

I was wondering if anyone can point me in the right directions for a LLMD who specializes in hard to treat Bartonella infections? I have been hitting Bart hard for the past 4 years and have come so far. I made so much progress with my current LLMD but sadly he is no longer practicing so I am looking for someone else to help me finish the journey!

I have contacted Dr. M the bart guru and he is no longer accepting new patients. I have also been in contact with Dr. B at NC State and he reccomended Dr. P in CT.

I am familiar with Dr. J in DC.

For the mean time I am working with Dr. R in WA but I would prefer to find someone within driving distance (east coast).

My current regimene is minocycline / rifampin / bactrim / mepron and now methylene blue (which has been a game changer).

I would appreciate any feedback you could provide.

** Please use last initials only **

[ 07-09-2022, 02:52 PM: Message edited by: Lymetoo ]

Posts: 1 | From SE-PA | Registered: Jul 2022  |  IP: Logged | Report this post to a Moderator
hiker53
Frequent Contributor (5K+ posts)
Member # 6046

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Welcome to Lymenet.

I am unfamiliar with LLMDs on the east coast but I bet someone else will come along to help.

Are there support groups in your area that you could reach out to?

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

Posts: 8890 | From Illinois | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet. PM sent for two top LLMDs in PA & CT.

Check the PA Lyme Support Groups - maybe they can help you.

www.lymepa.org

http://whatislyme.com/lyme-in-pennsylvania/

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

You can check the following link for support groups in different states:

https://whatislyme.com/websites-and-support-groups-by-state/

Read the books written by the top LLMD, Dr. Richard Horowitz, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Hi HmsVictory

Have LOTS of leads and reads for you.

First, did you see my latest post ‘It’s Here. Dr H’s New Protocol’?
Here’s his published paper on the use of Dapsone;
https://www.mdpi.com/2079-6382/11/7/912

He states 63% of chronic Lyme and Bartonella patients achieved remission in short pulsed Dapsone combination therapy.

There are no cures at this time but remission is just as good.

There is a new Lyme Center;
https://www.columbia-lyme.org/cohen-center-health-and-recovery-lyme-and-tick-borne-diseases
(They offer second options too)

More about Columbia Lyme Center and Clinical trials;
https://www.columbia-lyme.org/patients

Dr M is the most knowledgeable. Here is a webinarof him speaking about his personal protocols. He stresses that a Bart patient will fail therapies if their adrenals aren’t addressed. Also all body functions on Dr H’s MSIDS map MUST be addressed.

https://youtu.be/nT33PtDuJD0

Scroll down to Dr M’s key takeaways
https://www.betterhealthguy.com/ilads-2015

Many Bartonella patients offer their experiences on the ‘Breaking Down Bartonella’ Facebook website.

https://www.facebook.com/groups/1104493829902071/about/

And there’s always the very entertaining Jake on the ‘Bartonella babes’ On you tube.

https://youtube.com/c/BartonellaBabe

You definitely need a LLMD in your area. There are many good ones and lthanks to covid, many also offer Skype, tele-med and phone consultants.

You can choose to get a list of LLMD’s sent to you via Global Lyme Alliance or ILADS (International Lyme and Associated Disease Society.) These are simple e-mail formats that you fill out and they respond with LLMD’s in your area, there is a message box where you can state you are looking for a Bartonella expert.

It is up to you to research each LLMD. To do this, google for patient reviews.

When calling a LLMD, ask if they follow Dr H’s new protocol.
Dr H has been training other LLMD’s . Also his office might point you to another practice that is currently prescribing to his specifications.

Or when calling LLMD’s, ask if they follow Dr M’s Bartonella protocol.

Here’s Global Lyme Alliance;
https://www.globallymealliance.org/lyme-patient-support/find-medical-professional/

Here’s ILADS;
https://www.ilads.org/patient-care/provider-search/

I will send you a pm for PA, CT, VA and MD.
Healing wishes 💚

Posts: 2977 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
   

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