I was wondering if anyone can point me in the right directions for a LLMD who specializes in hard to treat Bartonella infections? I have been hitting Bart hard for the past 4 years and have come so far. I made so much progress with my current LLMD but sadly he is no longer practicing so I am looking for someone else to help me finish the journey!
I have contacted Dr. M the bart guru and he is no longer accepting new patients. I have also been in contact with Dr. B at NC State and he reccomended Dr. P in CT.
I am familiar with Dr. J in DC.
For the mean time I am working with Dr. R in WA but I would prefer to find someone within driving distance (east coast).
My current regimene is minocycline / rifampin / bactrim / mepron and now methylene blue (which has been a game changer).
I would appreciate any feedback you could provide.
Read the books written by the top LLMD, Dr. Richard Horowitz, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Posts: 8981 | From Illinois | Registered: May 2006
| IP: Logged |
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Hi HmsVictory
Have LOTS of leads and reads for you.
First, did you see my latest post ‘It’s Here. Dr H’s New Protocol’? Here’s his published paper on the use of Dapsone; https://www.mdpi.com/2079-6382/11/7/912
He states 63% of chronic Lyme and Bartonella patients achieved remission in short pulsed Dapsone combination therapy.
There are no cures at this time but remission is just as good.
Dr M is the most knowledgeable. Here is a webinarof him speaking about his personal protocols. He stresses that a Bart patient will fail therapies if their adrenals aren’t addressed. Also all body functions on Dr H’s MSIDS map MUST be addressed.
You definitely need a LLMD in your area. There are many good ones and lthanks to covid, many also offer Skype, tele-med and phone consultants.
You can choose to get a list of LLMD’s sent to you via Global Lyme Alliance or ILADS (International Lyme and Associated Disease Society.) These are simple e-mail formats that you fill out and they respond with LLMD’s in your area, there is a message box where you can state you are looking for a Bartonella expert.
It is up to you to research each LLMD. To do this, google for patient reviews.
When calling a LLMD, ask if they follow Dr H’s new protocol. Dr H has been training other LLMD’s . Also his office might point you to another practice that is currently prescribing to his specifications.
Or when calling LLMD’s, ask if they follow Dr M’s Bartonella protocol.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/