I am writing to ask for your help in finding a LLMD in the New York City area. I have just been diagnosed with Lyme disease and unfortunately, I will only be in the area for another week.
I understand that finding an LLMD can be difficult, especially on short notice, but I am hoping that someone in the community might have a recommendation or lead on a reputable doctor who can help me with my treatment.
If you have any information on LLMDs in the NYC area, or if you have any advice on how to find one quickly, I would greatly appreciate it. I am really hoping to get the treatment I need as soon as possible, so any help you can offer would be greatly appreciated.
Thank you in advance for your help.
Posts: 4 | From New York, NY | Registered: Dec 2022
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Welcome to LymeNet jajajaja
May I ask how and who diagnosed you? Were you diagnosed by blood tests or by clinical symptoms? Is it a new bite?
The reason I ask is because LLMD’s usually have a wait time till you can get an appointment. But common sense will tell you it’s hard just to get into your primary doctor within one week,
I just don’t see how it’s feasible.
Do you want LLMD’s for where ever you are heading to next?
Do you want to start treating yourself with herbs until you can get a LLMD appointment? I’m not sure the herbal protocol can be delivered within a week due to the holiday.
Here are 2 organizations that can connect you with LLMD’s throughout the U.S. These are easy e-mail formats that you fill out and they respond with LLMD’s closest to you.
I know of one LLMD in New York City who will see you immediately following a new tick bite. I don’t know if this pertains to you but I will send you a private message.
Posts: 2968 | From Florida | Registered: Nov 2016
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posted
Thank you so much for taking the time to sharing all of this information!
I have clinical symptoms that was thought to be Long Covid (think executive function issues, brain fog, extreme tiredness, weird nerve sensations, etc.) but received results today that indicate I have Lyme Disease.
Specifically, Lyme Ab Screen of 2.26 with 18, 41, 45, and 66 kD (IgG) Bands returning reactive (4/10 vs. 5/10 but I've read that should not be of consequence).
I am in a peculiar situation where I am headed to next will likely be unable to support Lyme Disease treatment, so I'm trying to get something started before then if at all possible. Particularly, if I can get the any relevant bloodwork done before the end of the year, it would be to my advantage as I have a major change in my insurance coming up starting in 2023.
I know that the physicians are almost always not available via insurance but the bloodwork likely is, so hope to at least get as many of the tests that will be necessary before 2023. So if anyone has thoughts on this, it would be most welcome!
I will definitely dig into these links you've shared. Trying to learn as much as I can, as quickly as I can given the time constraint I face.
[ 12-19-2022, 11:21 AM: Message edited by: jajajaja ]
Posts: 4 | From New York, NY | Registered: Dec 2022
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Try for telihealth appointments. Do you have access to a fax machine, as they will want your lab results before ordering labs or meds.
Fill out e-mails to organizations in previous post. They usually respond fairly quickly.
I will send you more LLMD’s in NYCity. Hopefully one will squeeze you in. Good luck.
Posts: 2968 | From Florida | Registered: Nov 2016
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment! LLMDs are far and few between, so you need to go where they are.
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
When calling for an appointment, ask if they have any cancellations or a waiting list (call every day if you have to!). Patients have been able to get in sooner by doing this.
Contact the NY Lyme Support Groups - they would know better about NY.
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy them used online.
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the pencil/paper tab, make your changes, then click "Edit Post". Thanks.
Posts: 8978 | From Illinois | Registered: May 2006
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quote:Originally posted by Bartenderbonnie: Try for telihealth appointments. Do you have access to a fax machine, as they will want your lab results before ordering labs or meds.
Fill out e-mails to organizations in previous post. They usually respond fairly quickly.
I will send you more LLMD’s in NYCity. Hopefully one will squeeze you in. Good luck.
Yes, I do have access to a fax machine, so I will be able to send everything that way.
Thank you again for all the resources!
Posts: 4 | From New York, NY | Registered: Dec 2022
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quote:Originally posted by hopingandpraying: Welcome to Lymenet! PM sent for NYC.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment! LLMDs are far and few between, so you need to go where they are.
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
When calling for an appointment, ask if they have any cancellations or a waiting list (call every day if you have to!). Patients have been able to get in sooner by doing this.
Contact the NY Lyme Support Groups - they would know better about NY.
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy them used online.
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the pencil/paper tab, make your changes, then click "Edit Post". Thanks.
Thank you for this information! I am reaching out to providers today and doing a ton of reading from the above documents.
Also re: forum spacing, broke up previous post where it seemed reasonable. Good to know for the future.
Will update here further once I make some progress in ingesting all this great content and have completed outreach!
Posts: 4 | From New York, NY | Registered: Dec 2022
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